Petition for start clinical trial of ETEPLIRSEN drug for DMD in india

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Sir my self is BAKULESH.D.NAGAR, Trustee of INDIAN MUSCULAR DYSTROPHY society .

My son is suffering from DMD ,and in our trust there are more than 500 children who are suffering from different kind of muscular dystrophy,

Right now there is no medicine available in India for muscular dystrophy,recently for point mutation ,clinical trail started in Hinduja hospital but there are 13% children of total Dmd effect with point mutation ,rest of DMD patients could treat by ETEPLIRSEN, recently approved by US FDA and already conditional approval got in EUROPEAN COUNTRY.

But it's too much costly around 33lakhs per month which not affordable mostly by Indian people,

So my humble request to priminister of india to start the clinical trial in India and save the DMDchild in India.

 

 



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