Declare Type 1 Diabetes a disability in India
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Every year we, the care providers of children with diabetes, witness a number of tragic events in the lives of these children due to lack of support. Most children with diabetes have Type 1 Diabetes due to deficiency of insulin. The disease has nothing to do with their life style or eating pattern and can affect any child. These children are completely dependent on insulin and would die without it. They also frequently develop hypoglycemia (low sugar levels) another life threatening condition.
Every year thousands of children in India develop the diseases. The cost of treatment (approximately Rs 4000 per month for a 30 kg child) is often beyond the reach of many families. Low sugar levels during examinations often result in loss of time and grades despite all the hard work put forward by these children. Schools are not sensitised to the unique needs of these children like extra time for low sugar levels during examinations and carrying snacks and glucometers during exams.
Declaring Type 1 Diabetes a disability would help these children cope with the struggles of their daily lives. Most countries consider Type 1 diabetes a disability and provide special assistance to these children. The right to disability act 2016 has been expanded to include conditions like thalasemia, hemophilia, dwarfism and sickle cell disease that were conventionally not considered a disability. Unfortunately Type 1 Diabetes has not been included in the list leaving lakhs of Indian children with the disease in a lurch. Making Type 1 diabetes a disability would help efforts to ensure universal availability of insulin and sugar monitors to children with diabetes and in providing them suitable environment at school and homes. Come join us in getting children with diabetes their due.
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