Help! The lupus patient.. they have to live their lives on costly medicine no cure till nw
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Hello .. My name is Chitra LOHIA..I live in Dehradun.I am suffering from s.l.e with lupus nephritis type 4+5.. (Its a chronic disease. )from past 13 years. I got this disease when was just 13.. It is so rare disease only 10 people effected in 100000. I'm now 27 ...I'm getting treatment from Pgi Chandigarh. It have no cure .. But can b suppressed from medication only.. I have done my Academic with this disease .. Though it was tough but I completed my graduation in biotechnolgy and MSc in chemistry..followed by B.ed. ... that too with 70%(Ist class) I had faced lots of problem because of this disease.. Severe pain in whole body.., body cramps, edima.....the disease have effected my kidney. I have gone through chemotherapy twice while pershing my graduation... I also gone through kidney biopsy thrice ..And now docters are plannings again for the biopsy . My most of life I spend was in hospital ...Hospital is my second home..But I fought with every problem comes my. ..way.
Till now my dad had afford all my medication schooling etc.. Now he is retired this 31st January ..He too is now not well .. .. He too suffering from B.P thyroid, suger. He is helpless now...
My monthly medical allowance is about 30k.... Beside having good academic records I am jobless.. I did job as PGT chemistry lecture in school. But in private school they hardly bothers of what pain you are suffering from.. They just want you to work more and pay less... They hardly have any centiment with you... So have to quit .
I wanted to do job but can't able to do because of this disease.
Currently my condition is getting worst day by day. Docters are trying to save my kidney. Right now I'm on multi target therapy. The things I'm facing now are edima , weight gain, bone deficiency( osteopenia) ,anemia .. Severe body cramps. I used to get body cramps any time ,any where. And the pain is so worst I couldn't resist.. Left with no other option than to take pain killer injection.. .. The pain is so worst .that time I feel like to kill my self... But.. Couldn't do any thing just to wait for pain to vanish.
Currently I'm on high steriods .... Medicine which I am taking right now are wysolone40 mg, cellcept -3gm, tacrolimus-6gm followed by calcium ,iron supplement, atorvas, telma etc.. All of these medicine are very costly.
I want the government ...to help... Me.. Thorough my medical allowance.. ..and provide me a government job where I can afford my self .. And continue my lively hood....
If any body have doubts I've my all medical reports till now. .. And my email I'd firstname.lastname@example.org.
I request to all to sign my petition.. Till the government listin my words.
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