For the Rights of Baby Lunah; grant her her rights to live!
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For the rights of Baby Lunah, for the light of Lunah! Overturn the decision!
Our almost 11-month old daughter, Lunah Rijksen, is being denied coverage of heart surgery by the AZV, Aruba's General Medical Insurance, based on her condition Trisomy 18.
The AZV is an institution that falls under the authority of the Government of Aruba. As an island pertaining to the Dutch Kingdom, that has signed and ratified the treaty with Unicef "The Convention on the Rights of the Child", our children's and parents' rights are urged to be legally respected and fulfilled. Medical specialists with ample experience in Lunah's condition are positive that the surgery will prolong and improve Lunah's life substantially.
While our Trisomy 18 children are still stigmatized by earlier beliefs that children with this condition are "incompatible with life" and "hopeless", recent data and research are bluntly contradicting this belief. Some can live a longer better life, if they receive the proper medical intervention, assessing every case on its own.
Nowadays there is much that can be done. Denying them their chances is against their rights as human beings, more so because the decision not to do anything to help them is based on biased unfounded grounds.
What can we do? We, as a community, can start by being the change we would like to see in our surroundings, in our humanity. Our voices CAN be heard.
If you are against discrimination against our special children, and are of the opinion that they too, as a human being and part of our society, deserve a fair chance to a better, longer life, we kindly request you to sign the petition.
This way our voices can be heard, it can safe our Lunah's life, and many other innocent ones who are facing discrimination because of their condition.
Alone we can go fast, together we can go far!
BE THE CHANGE YOU WANT TO SEE!!!
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