Ensure access to treatment to pulmonary hypertension patients before it's too late
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Pulmonary hypertension (also known as PH) is a progressive rare lung disease, without any known cure. Several treatments are available targeting the improvement of the symptoms, however if the condition of the patient is still deteriorating, ultimately a heart and lung transplantation may be an option.
Unfortunately, holistic care and appropriate treatments are not available in all countries and immediate actions are needed:
- establish expert centres and improve access to the already existing ones
- ensure that medications and treatments (including surgical interventions) are available for the patients and their accessibility is not limited by national policies and lack of reimbursement
- ensure that appropriate policies are in place to promote organ donation and an effective transplantation program exists
- ensure that PH patients are treated as a "whole" by tackling the psychological, nutritional, and rehabilitative aspects of the disease; ensure that patients living with PH are granted disabled status to facilitate their integration to the community and self-reliance.
We, the PH community, call upon immediate action to address these unmet needs of patients with pulmonary hypertension.
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