Ensure access to treatment to pulmonary hypertension patients before it's too late

0 have signed. Let’s get to 500!

At 500 signatures, this petition is more likely to be featured in recommendations!
At 500 signatures, this petition is more likely to be featured in recommendations!

Pulmonary hypertension (also known as PH) is a progressive rare lung disease, without any known cure. Several treatments are available targeting the improvement of the symptoms, however if the condition of the patient is still deteriorating, ultimately a heart and lung transplantation may be an option. 

Unfortunately, holistic care and appropriate treatments are not available in all countries and immediate actions are needed:

  • establish expert centres and improve access to the already existing ones
  • ensure that medications and treatments (including surgical interventions) are available for the patients and their accessibility is not limited by national policies and lack of reimbursement
  • ensure that appropriate policies are in place to promote organ donation and an effective transplantation program exists
  • ensure that PH patients are treated as a "whole" by tackling the psychological, nutritional, and rehabilitative aspects of the disease; ensure that patients living with PH are granted disabled status to facilitate their integration to the community and self-reliance.

 
We, the PH community, call upon immediate action to address these unmet needs of patients with pulmonary hypertension.



Today: Gergely is counting on you

Gergely Meszaros needs your help with “Political decision makers: Ensure access to treatment to pulmonary hypertension patients before it's too late”. Join Gergely and 368 supporters today.