Petition to pass the Medical Nutrition Equity Act!

Reasons for signing

See why other supporters are signing, why this petition is important to them, and share your reason for signing (this will mean a lot to the starter of the petition).

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Frances Gundrum
Feb 29, 2020
Of my high school friend Jan William Gribben

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Ryan Breneman
Dec 16, 2019
I have PKU and this is mandatory to assure that PKU treatment can remain widely available for all until there is hopefully a cure! Support PKU and My PKU Foundation

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Kyliema Dalziel
1 year ago
To help my sister and her daughter xxoo

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Carole McMillan
1 year ago
Carole McMillan..because we live in the U.S. & everyone deserves good health.

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Kelly Darst
2 years ago
They need help.

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Lindsey Miller
2 years ago
I have msud a disease I was born with so this means a lot to me. 2 yrs ago I got a transplant but my brother still has it.

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Tara Noe
2 years ago
I am a 41 year old woman diagnosed at 7 days old with PKU. I was on lo pro diet until 6 years, at which time the doctors assumed would be a “safe” time to be taken off the diet. There is NO safe age to be off the diet. Now, they are finding that is indeed a lifetime diet. When I was taken off and these facts were not known, I began developing issues with concentration, depression, anxiety and much more. It wasn’t until I became pregnant that I was placed back on the diet. My levels were kept low and closely monitored, though the doctors had little knowledge of PKU and asked me a lot of the questions instead of the other way around. It was very discouraging, yet I was glad to be able to help educate them. I myself, am very lucky to be able to receive my formula through my state of NC at no cost but it burdens me greatly that ones as myself do not have this advantage. I take it for granted daily. I am signing because I wholeheartedly believe there should be no question at all that this medical formula isn’t a necessity to live. It absolutely is. I will gladly show anyone that I am waking proof that it is needed, for I will forever suffer from the data I was not on formula. I pray all PKU patients receive all that they need. Help educate!

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Brandon Davis
2 years ago
Im signing this for all of the people who NEED their medical treatments. Including those whom i love and admire!

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melody davis
2 years ago
Im signing this because i have pku and just like a diabetic is able to get insulin when needed i deserve to be able to have access to my medical foods when i need them.

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Leighanne Parry
2 years ago
My partner not only has pku but also Crohn's disease