Create a separate category for Myalgic Encephalomyelitis
Create a separate category for Myalgic Encephalomyelitis
We ask that Patients Like Me create a separate category for Myalgic Encephalomyelitis consistent with the International Consensus Criteria, and that it be distinguished from Chronic Fatigue Syndrome and other disorders by its hallmark characteristics: neurological, immune, and energy impairments, and post-extertional exhaustion, which worsens the symptoms of those impairments.
Patients living with these disease suffer severe impairment, disability, and occasionally death. This is a devastating illness that is under-researched, and for which there is no standard diagnostic test, treatment or cure.
Research into biomarkers or treatments have been hampered by studies that use either overly-inclusive or inconsistent diagnosis protocols. The result is that in addition to ME, many of the subjects studied may be suffering from other sources of long-term fatigue, such as depression, sleep disorders or post-viral fatigue.
Patients Like Me has the opportunity to be at the forefront of research into this disease by engaging with an active and informed community of ME patients, who are already working with doctors around the world to pursue novel treatment therapies suggested by research in both conventional and alternative medicine.
Help us to quantify and create a record of our symptoms and treatment experiences. Help us to find a cure.