Doctors I am NOT only an insurance holder, I AM A HUMAN being begging for relief
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Doctors I am NOT only an insurance holder, I AM A HUMAN being begging for relief from this excruciating disease which is Endometriosis
PLEASE SIGN THIS PETITION FOR THE GYNECOLOGY SCHOOLS TO PROVIDE ENOUGH TRAINING IN THE RESIDENCE PROGRAM ON HOW TO DETECT ENDOMETRIOSIS AT AN EARLY STAGE AND FOR DOCTORS TO TREAT WOMEN AND THE DISEASE PROPERLY.
We women are daughters, mothers, sisters, wives, employees, students, households, caregivers and more. We don’t only deserve but we also DEMAND to be treated with respect. Unfortunately, I feel everything but respected. I feel forgotten, I feel HURT, I feel CHEATED by the Medical Society that is supposed to care for me and other women. I feel like an abandoned child and yes, the Medical System is my father who did not give a crap and just left. Particularly when the statistics say that 1 out of 10 women have Endometriosis. On average it takes 10 years for a woman to be diagnosed (MacMillan 2014). This results in more than 200,000 US cases per year.
This is a serious condition that CAN NOT ONLY spread to the organs in your pelvis but in some cases, it can even spread to your lungs, chest, heart and brain (Shakerian et al. 2015). The number of patients having their lungs and kidneys collapsed during their periods is increasing. In my case, it caused my organs to glued to each other. It caused my bladder to be reconstructed. It created adhesion. I paid the price of the removal of my uterus, Fallopian tubes and left ovary as I had advanced Stage 4 disease and in 20+ years it invaded me with all its strength. Thanks to God I have a daughter, but how about those women that unfortunately don’t have that privilege because THEY ARE BEING MISTREATED, MISDIAGNOSED.
One of the most common way of Doctors treating this disease is burning (ablation) the surface, the top layer where the endometriosis is. This procedure leaves all endometriosis roots, causing it to comeback; it doesn’t go deep infiltrating implants when burning the top layer (Soini et al. 2017). The chances of becoming pregnant are less every time they burn it and the chances of miscarriages increases due to the heat used that tends to damage the healthy tissue in our reproductive organs. There are other options that will help us better. Excising the lesions from the affected area is a good option but MOST DOCTORS DO NOT KNOW HOW TO DEAL WITH THIS, THEY NEED MORE MEDICAL TRAINING.
Women with endometriosis are being misdiagnosed and treated for each different diseases. Doctors are not treating the underlying disease that is triggering all of these other symptoms. Some of my misdiagnosed diseases were; gluten intolerance, fibromyalgia, stress, depression, pain intolerance, join problems, IBS, GI problems, and my favorite one “It is all in your head” (Hoyt 2011). I miscarriage my twins at 5 months pregnant. They treated me for each of them, without even realizing that the main cause was the endometriosis and the rest were just side effects. I took 20+ for me to get diagnosed by myself, yes I diagnosed myself.
In fact, gynecology schools are not providing enough training in the residence program on how to detect the disease at a sufficiently early stage. As a result, doctors are not performing the correct procedure (such as a sonography or laparoscopy where required) and they are only diagnosing it at a later stage when it has become chronic. Even when diagnosed, proper treatment is often not provided. In fact, proper treatment consists of education of the patient and then a clean removal – a surgical excision through laparoscopy (Seckin 2014).
The word endometriosis comes from the word "endometrium" (pronounced en-doh-MEE-tree-uhm)—endo means "inside" and metrium (pronounced MEE-tree-uhm) means "uterus, where a mother carries her baby.” Health care providers call the tissue that lines the inside of the uterus the endometrium (NIH 2017).
If Doctor’s don’t know how to treat the disease, they should leave it alone because burning it only create scars and more future problems for women and that will even make it more difficult for Surgeons to treat it– this is according to Dr. Ken Sinervo, the CEC’s Medical Director & President of Kenny Sinervo, MD FRCSC LLC, who is known around the world not only as a pioneering, expert endometriosis surgeon. He suggested that a better procedure should be to excise the underlying area fully or partially because this greatly reduces the chance of a relapse. There is a very low probability, according to his observations of the last 20 years, of a relapse occurring (Hoyt 2011).
Lets stand together and demand our rights!!!!!!!!!!!!
Hoyt, R. (2011, December 9). Ending Endometriosis - A Documentary. Retrieved from <https://www.youtube.com/watch?v=81dpitSGKNA&feature=youtu.be>
MacMillan, A. (2014). 15 diseases doctors often get wrong. CNN.com Retrieved from <http://www.cnn.com/2014/08/26/health/diseases-doctors-get-wrong/index.html>
NIH (2017). About Endometriosis. Retrieved from <https://www.nichd.nih.gov/health/topics/endometri/conditioninfo/Pages/default.aspx>
Shakerian, B., Mandegar, M. H., Moradi, B., & Roshanali, F. (2015). Heart and Lung Metastases From Endometrial Stromal Sarcoma in a Forty-Two-Year-Old Woman. Research in cardiovascular medicine, 4(3), e26066-e26066.
Seckin, T. (2014). Dr. Tamer Seckin Opens National Dialogue About Endometriosis on Dr. Drew Podcast. Retrieved from <https://www.youtube.com/watch?v=i-XxvNmAmpg>
Soini, T., Rantanen, M., Paavonen, J., Grénman, S., Mäenpää, J., Pukkala, E., ... & Hurskainen, R. (2017). Long-term Follow-up After Endometrial Ablation in Finland: Cancer Risks and Later Hysterectomies. Obstetrics & Gynecology, 130(3), 554-560.
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