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The Commission of a Diagnostic Service for Pathological Demand Avoidance (PDA) in North Staffs

This petition had 484 supporters


There is currently no diagnostic service, in North Staffordshire, for children who fit the profile of an Autism Spectrum Condition (ASC) most closely resembling that of Pathological Demand Avoidance (PDA).  PDA is extremely complex and challenging to manage both for the individual affected and for their families.  Due to the atypical ASC presentation that these children present with they often fall through the ASC diagnostic net. This can leave these children and their families with no correct support at all from health, education and social services. Without the correct support, the long term outcome for these children can be very bleak. Severe mental health issues, including self harm, is very common and may continue throughout adulthood.  As long as clinicians remain fixed on trying to treat the evident mental health issues instead of identifying the underlying condition that is perpetuating these mental health issues, little progress will be made. Thankfully I had the finances to fund a private assessment.  Other families are not so fortunate and desperately need your help. A correct diagnosis of PDA is a sign post to the correct support and strategies for these children and those who support them. In the long term, a diagnosis is invaluable to these children and their families and is also likely to be very cost effective for the health service. Please sign this petition to help families in North Staffordshire to secure the correct support package for their child with PDA.  My Daughter is not naughty, she has an Autism Spectrum Condition called PDA. Please help other families remove the 'naughty' label from their children also. Thank you and please view the attached video to understand the reality of living with PDA both for the child and for the parents https://www.surveymonkey.co.uk/r/8FTCBGP



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