SCRAP THE ACCESS PATHWAY FOR DIAGNOSING CHILDREN

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CAN YOU PLEASE HELP ME GET 1,000 SIGNATURES SO I CAN GET 5 MINUTES IN FRONT OF THE FULL COUNCIL?

I founded our local group for helping parent carers, just over two years ago.  We are now the largest collective of independent parent carers locally.  We educate and empower each other.  Myself and Lynnette Newman are challenging the Access Pathway, which is bringing misery to our parents.


NELC railroaded the Access Pathway through in April 2018. It's meant to be a pathway which helps pick up serious conditions like autism. But it stops parents being able to go straight to the GP with developmental problems. They no longer can be referred directly from GP to paediatricians or CAMHS. Instead they have to go through the Council's Childrens' Services, along with other social cases such as neglect or domestic abuse. In fact, a "panel" looks at the paperwork on the case before making a decision - THEY DON'T EVEN MEET THE CHILD OR PARENTS IN PERSON! This means that some children with autism and ADHD are still going round in circles, unable to even get an appointment with paediatricians.


It's nearly a year since this monstrosity started, and we have seen very few referrals for assessment or diagnosis - especially of autistic spectrum conditions. From the start of the pathway in April, right through to December 2018, the panel made only 12 referrals for an autism assessment. Not all of those referrals will result in a positive diagnosis. The typical number of referrals has dropped by more than 75%*.  Our group's moderators meet with the Council to explain what parents really want, but they aren't being listened to.  


Parents would like that link via GPs restored.  None trust the Council, and very few trust the diagnostic techniques of CAMHS. They would like to see Community Paediatricians play a strong part in assessing for autism and ADHD, and to help administer the pathway transparently.  We would also like to see the complaints process placed back with PALS, where it should belong.  These are complex conditions, and can only be diagnosed by NHS professionals. 

* From 1 March 2017 - 28 February 2018:  CAMHS received 56 referrals for ASC assessment and diagnosed just 18 cases of ASC.  

  • We would link the link via GP, who refers to paediatricians, restored
  • We do not want to use the Council's statutory complaints procedure for complaints of a specialist medical nature.
  • Parents do not trust the Council or CAMHS for administering the pathway; their favoured NHS body is our paediatricians.
  • We would like other NHS professionals involved in diagnosis, like paediatricians and SALT.  Please stop Yoing Minds Matter (CAMHS) making a final decision based on one psychologist's verdict. 
  • Most children undergoing a specialist ASC assessment only take 3 - 4 hours of appointments, and NOT the 40-hour assessment professed by CAMHS.  Many parents are unhappy and suspicious with the outcome, but have to go to Sheffield to have it overturned.
  • Parents were promised pathway figures and benchmarking with our Yorkshire & Humber neighbours.  These haven't materialised.