Provide Cannabis Treatment funded by NHS for childhood epilepsy

Provide Cannabis Treatment funded by NHS for childhood epilepsy

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Nancy Crookes started this petition to NHS

The legalisation of cannabis treatments for childhood epilepsy in November 2018 will have been greatly welcomed by parents of children with epilepsy.

As a Special Needs Teacher of 24 years I have seen the distress of children and their families who have to suffer this little understood condition .

I have seen the fear in a child’s eyes as they go into seizure.  I have felt the pain of parents who do not  know if their child will wake up alive each morning.

I have seen the lack of funding and support from the NHS and Social Care. There are staff training issues, there is a lack of specialist nurses, there is little , if any respite for sleep deprived families,  specialist equipment such as sleep blankets or support dogs are not readily on offer.

Medication is hit and miss.  Children I have known have had seizures lasting over an hour.  It is unbearable to think of the brain damage and energy loss to these children.  They potentially risk death every day.

But there is hope . Limited studies and individual success stories show that cannabis treatment can positively stop seizures .  Yet due to lack of medical training , high treatment cost and limited scientific evidence, the November 2018 legislation is not sufficient .

November 2018 legislation allowing the treatment needs to be improved upon .  Parents of children with epilepsy and adult patients who want to take the risk of trying the medication should be enabled by the NHS.  I do not believe there is such a problem with cost and production of a simple plant based medicine.

We want fast action from the government and NHS .  We want quick, effective research alongside the provision of the treatment, if necessary with permission  signature from parents ( as for any medical operation) 

We do not want to hear of any patients being refused treatment.  We want medical staff courageous enough to believe the successful limited evidence.

We want the right to take the risk.

We do not want a monopoly of pharmaceuticals and government red tape hindering the survival of our precious children and families with epilepsy. 

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