Hairdresser 24 HAILEY MANN ON HER URGENT NEED FOR KAFTRIO

Hairdresser 24 HAILEY MANN ON HER URGENT NEED FOR KAFTRIO

0 have signed. Let’s get to 100!
At 100 signatures, this petition is more likely to be featured in recommendations!
E Malik started this petition to NHS Scottish government and

Hailey Mann, 24, has been told she will soon die due to cystic fibrosis and her only hope is Kaftrio which is not yet available in Scotland due to “red tape and bureaucracy

A hairdresser with Cystic fibrosis has written an open letter pleading for access to a so-called miracle drug that could give her "a chance at life".

Hailey Mann, from Aberdeenshire, said she was led to believe by doctors she would be granted use of the drug Kaftrio - not yet available in Scotland - on compassionate grounds in January.

However, the 24-year-old said the coronavirus pandemic appears to have left things in limbo with a consultant at Aberdeen Royal Infirmary telling her last week to begin preparing for end-of-life.

In her letter - seen by the Daily Record - which she hopes will reach First Minister Nicola Sturgeon, she said: "I will soon be dead. I don’t need to be."

Let's help get the life saving drug she needs a whole life ahead of her i hope and pray she is given a chance at life � 

Pharmaceuticals in recent weeks to make the triple gene therapy drug available for patients there as soon as the European Commission grants a licence.

The Scottish Government is expected to secure its own deal in the near future – but Hailey says she needs the drug now to save her life.

0 have signed. Let’s get to 100!
At 100 signatures, this petition is more likely to be featured in recommendations!