The doctor currently responsible for the care of Enma, a child with Wolf-Hirschhorn Syndrome, should release her from his care, per the repeated request of her parents.
This petition had 940 supporters
Enma has WHS, a rare chromosome abnormality. Her current doctor has no understanding of the syndrome. The doctor is currently only offering end of life care and refusing intervention her parent's have requested based on her WHS diagnosis. New Hanover Regional Medcial Center is not equiped to provide care for Enma as they do not have a geneticist or a nephrologist on staff. Enma is in urgent need of dialisis and can not be provided with this treatment at New Hanover. Her current doctor refuses to release her so that she may get the care her parents want for her at a different hospital where the doctors are willing and able to provide neccessary treatment. This is a life or death situation for this baby and her parents are desperately trying to give her a chance at life, while her current doctor is refusing treatment as well as transfer.
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