Children under 21yrs old with hyperinsulinemia to be able to access a CGM under the NDSS
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Maddison's aim and passion is to create and bring awareness to challenges and the incidence of congenital hyperinsulinemia in babies and children. Her fight with the current eligibility criteria within Australia for babies with CHI to access a CGM (congenital glucose monitor) is ongoing and tedious. After countless applications and countless rejections due to "No funding". A CGM system provides continuous insight into glucose levels throughout the day and night. The device displays information about glucose direction and rate of change providing users additional information to help with their diabetes management. Unlike a blood glucose meter (BGM), which provides just a single glucose reading, CGM systems can provide real-time, dynamic glucose information every five minutes — up to 288 readings in a 24-hour period. You can gain valuable insight about your glucose levels, rate and direction of change, giving you additional insight to proactively manage blood sugar levels. This will eliminate the countless heel pricks per day, constant access to levels for Maddison and Shaun whilst Bohdi is in care, eliminate the need to wake Bohdi throughout the night to prick his heel and ease the mind of Maddison and shaun whose constant worries about an impending hypo have an affect on their everyday lives. For a child whom is non-verbal, no ability to communicate that he is feeling "off" or feeling a hypo come on these life saving devices are crucial.
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