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National Genetic Testing and Preventative Surgery Reform

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National Genetic Testing and Preventative Surgery Reform

Dear Ministers,


As a BRCA carrier I could cost the Australian Taxpayer approx 1.7million

The BRCA1 and BRCA2 genes are just two mutations known to be associated with hereditary breast and ovarian cancer. The risk of BRCA positive women getting breast cancer is up to 80 per cent and 60% for ovarian cancer.

Even with dramatic genetic medical advancements, we are stuck in the dark ages. A uniform national approach in regards to genetic testing and preventative surgery is urgently needed.

In light of Angelina Jolie’s announcement and subsequent awareness, now is the time for actionable change. A family with a known hereditary cancer gene should not have a different journey or outcome dependant on what state they live in or how wealthy they are.

Some state healthcare systems do it well; others are atrocious making the journey all that more complicated for healthcare professionals and their patients.

As a taxpayer; if I knew the government could save approx 1.7 million dollars if a high risk woman was diagnosed early and the risk of them getting breast and ovarian cancer dramatically reduced, that’s a pretty good investment. Knowledge is power both and State and Federal governments should see this as the opportunity to save lives and money!

Many BRCA carriers are affected by cancer at a young age; some of us have beautiful babies. We only know life with cancer and have lived with cancer for generations through our sisters, dad’s, mothers, aunties and grandmas.  We have looked at our personal situation, weighed up the risks and come to a reality that prevention is crucial. It is time for the system to catch up! National genetic and preventative surgery reform will save lives.

We don’t want families confused with the current system to not investigate their genetic testing options or high risk women not doing preventative surgery because in some states it is considered cosmetic. Most importantly we don’t want families suffering through cancer if it could be prevented!

I watched my own mum diagnosed at 36, the years of fear and surgeries that followed. Then saw her heartache as I was wheeled into surgery; our 4th generation to receive the scars of hereditary cancer.

Pink Hope is Australia’s only charity for women and their families who are at high risk of breast and ovarian cancer.

On behalf of Pink Hope and our community, I am calling on the government make reform for every family that has faced the heartache, financial and emotional toll of hereditary cancer.

Join us and sign the petition for National Genetic and Preventive surgery reform at


Krystal Barter

Pink Hope Founder, cancer campaigner, mum, wife and BRCA1 carrier.

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