Improving access to care and treatment for Huntington’s Disease patients and families

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People affected by Huntington’s Disease (HD) does not get the health services they need despite the devastating impact of the disease. HD is genetic and fatal, and families are hit hard and suffer. 

There is no curative treatment, but patients can be helped to live better lives and manage symptoms if they get access to the right health services and support.   

Today, only a minority of people affected by HD get the support and help they need.  But there are solutions to this problem – expertise and knowledge exists – we only need to provide better access to all patients. 

Support us in advocating for HD patients right to health care services. Together we have the power to improve the situation.  Sign the petition and the call for action. 

Read our Consensus Statement here: