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HELP SAVE MY SON'S LIFE!
MEDICARE PART A- THE LAW STATES A PERSON IN NEED OF DIALYSIS or HAS RECIEVED A KIDNEY TRANSPLANT QUALIFIES for MEDICARE BENEFITS.
PART B- TO RECIEVE A KIDNEY TRANSPLANT YOU MUST HAVE PART A and PART B.
The process for one with a disability to be approved by Social Security for Social Security Disability is extremely difficult. WHY! Why, when someone is in most need of assistance is given the most resistance?
LAWS MUST BE CHANGED! To protect those who are disabled and need these life saving benefits. These laws on the books for Social Security were put in place in the 1950's.
If someone is in serious medical crisis. Seeing a state medical doctor which is part of Social Security's process. Should be the first priority and not the last step. This drags out the process and could cost a person their life. The state medical doctors records should be made available to you. After all they are making life decisions. Should'nt you have a right to know who these doctors are and what they say about you? I was told that it is confidential. Something seems terribly wrong with this system.
My son was diagnosed with Stage V Renal Failure and Polyarteritis Nodosa on July 12, 2012. This disease is rare and not even recognized by Social Security. This disease attacks the major organs in the body and in most cases goes undetected. Social Security thinks he is not disabled??? How can this be and who is behind the scenes making these poor decisions at the cost of my sons life when he is in need of a kidney transplant? I asked this question and they told me that is private information. Interesting considering the fact that nothing is private for my son. THE DOCTORS SENT OVER 600+ pages proving his disability proving he is unable to work. Why cause this man grief at this time of his life when he is in a crisis?
Social Security is guarded with their information and fails to answer any legitimate questions I have asked. Why???
HELP SAVE THOSE WHO ARE DISABLED AND WHO HAVE NO VOICE!
Social Security Administration claims that the law states the wait for Medicare is 24 months.
Medicare told me that any person in the stages of Renal Failure cannot be denied Medicare. Medicare directed us to go back to Social Security Administration. We were handed a 40 page print out stating Medicare will cover those in complete kidney failure or those who have had a transplant.
Why is one contradicting the other? How in the world is someone without insurance getting a transplant without Medicare in place with no insurance? Obviously, if you are applying for diability and medicare you need the assistance for the transplant.
If you have no insurance and your doctor diagnoses you disabled and unable to work. You apply for Social Security Disability then you are told you have to wait 24 months for Medicare? This does not make sense to me.
Bryan's temporary disability with the state ended the first of October 2012. Now, he has nothing and has applied for SSI and they told him they are not able to make a decision until the SSD has made a determination, that determination is whether he is truely disabled. WHAT? WHY, would they doubt the doctors at the hospital that is treating him? WHY?
This delay also prevents those from being added to the kidney donor list and prevents you from PAAD. PAAD is the prescription plan that is available if you are on Medicare.
My son Bryan was diagnosed with STAGE V Kidney Failure on July 12, 2012. Bryan was on unemployment and had no health insurance. Doctors were stunned that Bryan had kidney failure and STAGE 5. Bryan was admitted on July 6, and diagnosed July 12th.
Doctors placed him on disability. The rare disease known as Polyarteritis Nodosa is what caused Bryan's hyper tension and kidney failure. In most patients the disease goes undetected.
Social Security Disability says Medicare will not be available for 24 months. Doctors informed the SSD that Bryan was Stage 5 renal failure. SS states until Bryan is in complete failure, then Medicare will kick in. This prevents him from going on a donor list. Bryan was also told he will need a kidney within a year.
Bryan was just in a car accident last week. The hospital found fluid around his heart and decided to admit him. We left to grab some things from home. Hospital then suddently wanted to release him. NO HEALTH CARE, NO CARE! I called the nurse immediately in ER and requested they not send Bryan home. I stated, " Why risk sending Bryan home with fluid around the heart!"" Not my son if you want to do more tests he is there now!" Why tell him to go back to the clinic tomorrow. YES, this is still happening. If you allow it to.
They kept Bryan and after a few test the next evening he was released. Doctor states it is a small amount of fluid, not worth risking sticking a needle in. If you feel bad just come back. HOW IS HE SUPPOSED TO KNOW? Are they going to monitor it? YES, this is still happening to those without health insurance. Sad truth is it probably happens to those with health insurance.
I believe that if you were in this circumstance or a family member, you would expect these programs to be available. If your question is what about Medicaid. They have guidelines and in this case the unemployment was above the 900.00 guidelines so Bryan did not qualify. Bryan had to drop his unemployment to go on State Disability and nothing else is available. The health plans are outrageous and the copays are 30.00 to 50.00 a visit. That is more than anyone can afford on unemployment or disability. Especially, when he is paying for medications out of pocket. Total of 8 medications.
By Social Security Disability waiting for someone to go into complete failure. This means they go on dialysis. Dialysis is 3 times a week. People are on dialysis for months if not years. Possibly never getting a donor. The cost is out of this world I was told 1,500.00 each dialysis treatment. If Medicare is made available to those in the stages of Renal Failure, they are placed on a donor list immediately. Think of the money saved from lengthy time of dialysis. If they are fortunate to find their donors. Dialysis takes a toll on the body. A kidney transplant only makes much more sense. I think it is time for change.
Amber alert is for those lost. This enable a quick chance for finding the lost.
In this case let us give hope of finding a donor fast. By placing a person in need of a donor on the list enables them a better chance at life. Let us be proactive instead of reactive.
Please sign this petition. Help to save my son's life and those who fall between the cracks.
MAKE MEDICARE AVAILABLE FOR THOSE IN THE STAGES OF RENAL FAILURE! In fact Medicare stated that it is available to those in Renal Failure. Social Security says no you must be in complete failure. So, who is telling the truth and why are they not on the same page. Why when you ask who are the doctors making these decisions, we are told that is confidential information.
NOTE* BRYAN JANNELL, graduated from Mercer County Fireman Academy in June 2012. It was not easy for Bryan. All along not knowing he was struggling with kidney failure and he completed the course he made it. Soon after graduating Fire Academy, Bryan completed SORA to receive a certificate for Security. Bryan sold his belongings to use the $350.00 to pay for that Certification. Bryan also wanted to continue his training with Fire Academy to become an Inspector. Dreams were shattered but his human spirit is not shattered. Bryan's fight now is for a Kidney.
Time for Change...let us give those who are in need of donors the opportunity to be placed on a list without delay.
Please, support my petition with your signature. Bryan 29 years old has his whole life before him. Bryan deserves every chance there is for a kidney. So, does anyone else in this position. Bryan who graduated from Fire Academy wanted to help save lives himself. Now, let us work together to help give him that chance again.
HELP SAVE BRYAN'S LIFE!
Medicare decides not to cover certain testing used to monitor and prevent a serious health issue. Medicare opts only to allow 53 tests per year. The doctor states monitoring this issue is essential to prevent issue and cost the patient surgeries to fix the problem.
NOTE: The testing is more cost effective than the repeated surgeries that he has endured. I ask that you sign this petition and help me make this change that will enable patients to monitor themselves as doctor prescribes and save money and lives. Thank you for your continued support.
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