I have narcolepsy with cataplexy. There is ONLY ONE medication that gives us the restorative sleep we don’t get due to this disorder, it’s called Xyrem. I have been fighting with Medicaid since December 1st, 2012. They are denying it for 2 reasons. The first one is because 30 years ago I had a problem with self-medicating and taking amphetamines. This was 30 years ago and I have been clean since. The other reason is because I take pain medication for other medical issues. They say I can’t take the Xyrem along with the pain medications. Before I had to resign from my job and was on my employers insurance I took Xyrem for 6 months along with these pain meds. I had NO adverse effects. I did just fine on them. Today I had to put my 16 year old special needs son in foster care because Medicaid will NOT approve this Xyrem for me. My doctor has sent everything to them supporting the fact that I don’t have a drug problem and that I have already taken Xyrem along with the pain meds. They continue to deny. Today my doctor called Medicaid and was told there was nothing more they would do, it was the end of the road, they would NOT approve. Without this medication I cannot take care of my son. I WANT MY SON HOME WITH ME. I NEED MY SON HOME WITH ME. PLEASE SIGN MY PETITION AND HELP ME GET MY MEDS SO I CAN GET MY BABY HOME. I AM DYING INSIDE WITHOUT HIM HOME!!
I have reached my goal of 500 for the Medicaid appeal. I now am trying to get 1000 signers so I can send them to the President and any other politician that I can find email addresses too.