Arachnoiditis is a rare disease that affects thousands of people everyday but isn’t recognised as well in the UK, and affects your body in so many ways, from crippling pain, Restless legs, body cramps, forgetfulness, migraines body twitches even the feel of creepy crawls on your body or water dripping down your legs, it also causes incontinence, infertility and although you won't physically die from the pain gets so bad people have committed suicide just to get away from how painful it is .

But trying to explain to someone when we go to our benefit meetings or to the hospital no one understands, they think your putting it on but it's so much worse it has symptoms of MS as people end up in wheelchairs and has the pain factors of fibromyalgia but it effects the whole of your nervous system, making it not only impossible to cure but also with out a scan and a good doctor or surgeon it can go undetected for years, the pain will just continue to get worse.

People with Arachnoiditis generally can't work due to the pain relief they are on,

And I would like this disease to be recognised when we apply to PIP or DLA as I know only too well I have had to fight every year to get my PIP as the DWP think this will just go away they don't understand the pain it causes to put it in context the pain is that of a stage 4 cancer patient,

I'm on very high amounts of morphine just so I can crawl to the bathroom, like so many of us when we get awarded our PIP it's generally only low rate and only for a year or 2, what don't you understand.

THIS IS LIFE CHANGING THERE'S NO CURE!!

Most of us got this from back operations that have gone wrong or though epidural injections,

We didn't sight up for this it happened and we have to live with it!

But with your help and understanding you can make life that little easier and help us give us the help and benefit we need to live that little easier rather than making us stress and fight for something that could easily be avoided with the understanding of you medical team and with doctors and the DWP