Undiagnosed children

Undiagnosed children

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Jodie Hardwick started this petition to Matt Hancock
Undiagnosed children, people are not helped or investigated enough, doctors need to investigate in depth before they end the quest to follow up more tests. These children/people are left in limbo before all available test are carried out. Doctors are all to ready to tell parents/families their loved one is to rare to diagnose, even giving a wrong diagnosis to try to silence a loved one. This is my situation I was given a wrong diagnosis for my son, one which I questioned with numerous other doctors who all informed me that the symptoms my son was experiencing could never be all experienced with the diagnosis my son received, silencing a parent with the wrong diagnosis is not the answer. Working with the parent/ loved one is, leaving people in limbo with unrealistic diagnosis is not the answer. Especially when all tests haven’t been carried out.STOP MISDIAGNOSING TO SUIT THE NHS. BUDGET CUTS COST LIVES,BUDGET CUTS STOP DOCTORS DOING THEIR BEST, DIAGNOSIS CAN LEAD TO TREATMENT. Help me help the undiagnosed children/people get the help they deserve

Doctors need more money, there needs to be more specialist assigned to these rare cases. More research needs to be carried out, more doctors need to be assigned to rare diseases, and help needs to be more assessable at a faster rate

I started this petition because…
Iv been told my eldest has a neuromuscular disease, he’s had some tests but not all available, I was given a diagnosis I questioned and have been told there is no way my son’s symptoms would be caused by the diagnosis we was given. My youngest son also is showing signs of the same disease and getting the help he needs is pretty much impossible being bounced from one doctor to another, and ending up where we started, this needs to change for the children/people suffering with disabilities the doctors say are rare because after the first few test came back without answers they end the search why?? Budget?? Time?? So a price and schedule means diagnosis which could change a person’s life a family’s life is halted. Things need to change let’s get more money,time,and easier accessibility rare doesn’t mean not worthy.
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