URGENT: NO NEUROLOGIST - expert overseas neuromuscular consultant is SEEN AS URGENT NOW
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IDENTICAL TWIN SISTERS HAVE NO NEUROLOGICAL CLINICAL OVERSIGHT WHATSOEVER. Both are on Parkinson's medication and Morphine. Both have a complex multi-systemic progressive neuromuscular disease. They find themselves WITHOUT ANY CLINICAL OVERSIGHT WHATSOEVER for the past 16 months and are very worried indeed.
The twins do not feel they can continue and are getting sicker and weaker. They badly need a review and an expert clinical assessment, the last they had was in 2015 ABROAD. They had been sent out of Ireland to the UK as we do not have specialised centres here. Since returning in 2015 NOTHING has happened. They receive no therapies and no treatments and no consultant.
THIS IS UNETHICAL AND WE CALL ON THE MINISTER FOR HEALTH TO ADDRESS THIS ISSUE.
WE CALL ON THE MINISTER TO MAKE SURE THAT IDENTICAL TWINS HAVE MEDICAL CARE AND RARE DISEASE APPROPRIATE CLINICAL OVERSIGHT ON A CONTINUAL BASIS IN IRELAND AND USE THE OVERSEAS CENTRES THEY SO SUCCESSFULLY USED IN 2015.
ASK THE QUESTION - IS IT ETHICAL OR MORALLY RIGHT TO BE LEFT TO ROT AT HOME? THEY FEEL THIS IS EUTHANASIA BY STEALTH
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