Petition update

A Big Push to All U.S. Senators

Nicholas Grillo
San Francisco, CA, United States

Mar 13, 2015 — Nice boost in signatures this week. Keep up the good work!
Our campaign is receiving emails from supporters telling us Senators are responding to their emails. The Senate has jurisdiction over the FDA. Therefore, getting our U.S. Senators to take action is a very important facet of our campaign. This weekend, call or email both of your U.S. Senators (contact info provided below).

Thank you for all you're doing to make this campaign so successful,

Jehad Majed (jmajed@mac.com), Nick Grillo (gm6nick@gmail.com), Bethany Wolfe, and the Torrico Family


MESSAGE TO US SENATORS
[Share your personal story or just state that you are contacting the Senator on behalf of the ALS Community].

The 2012 FDASI Act gave the FDA authority to deviate from rigid rules and demonstrate flexibility in providing the terminally ill access to new treatment options. For the past month, thousands of people have been urging the FDA to grant Accelerated Approval with post-marketing requirements for a new ALS treatment, Genervon’s GM604. This request is based on:
1) Demonstrated Safety
2) Evidence of Efficacy
3) GM604 meets the criteria for the Accelerated Approval Program (AAP):
a. Surrogate Endpoints: Genervon's Phase 2A trials showed improvements in the treated group in both clinical measurements and multiple biomarker measurements.
b. Urgent and Unmet Need: No new treatment for ALS has been approved since Rilutek in 1995, which extends life expectancy by a few months with no improvement to quality of life. Another multi-year clinical trial for GM604 is a death sentence for more than 500,000 people.

Our FDA is under the jurisdiction of the U.S. Senate. Therefore, it is ultimately our elected officials’ responsibility to ensure that the right of life and the personal liberties of terminally ill patients are protected. This includes the right of these patients to access potentially life saving treatments.

On my behalf, please contact the FDA today and tell them that you support our self-advocacy and understand the urgency in getting potentially life-saving treatments to patients with ALS. Also, please ensure that Genervon’s GM604 is being given full and fair consideration for the Accelerated Approval Program.



Alabama
Sessions, Jeff - (R - AL)
(202) 224-4124
http://www.sessions.senate.gov/public/index.cfm/contact-jeff

Shelby, Richard C. - (R - AL)
(202) 224-5744
http://www.shelby.senate.gov/public/index.cfm/emailsenatorshelby

Alaska
Murkowski, Lisa - (R - AK)
202) 224-6665
http://www.murkowski.senate.gov/public/index.cfm/emaillisa

Sullivan, Daniel - (R - AK)
(202) 224-3004
http://www.sullivan.senate.gov/content/contact-dan

Arizona
Flake, Jeff - (R - AZ)
(202) 224-4521
http://www.flake.senate.gov/public/index.cfm/contact-jeff

McCain, John - (R - AZ)
(202) 224-2235
http://www.mccain.senate.gov/public/index.cfm/contact-form

Arkansas
Boozman, John - (R - AR)
(202) 224-4843
http://www.boozman.senate.gov/public/index.cfm/e-mail-me

Cotton, Tom - (R - AR)
202) 224-2353
http://www.cotton.senate.gov/content/contact-tom

California
Boxer, Barbara - (D - CA)
(202) 224-3553
https://www.boxer.senate.gov/contact/shareyourviews.html

Feinstein, Dianne - (D - CA)
(202) 224-3841
https://www.feinstein.senate.gov/public/index.cfm/e-mail-me

Colorado
Bennet, Michael F. - (D - CO)
(202) 224-5852
http://www.bennet.senate.gov/?p=contact

Gardner, Cory - (R - CO)
(202) 224-5941
http://www.gardner.senate.gov/content/contact-cory

Connecticut
Blumenthal, Richard - (D - CT)
(202) 224-2823
https://www.blumenthal.senate.gov/contact

Murphy, Christopher - (D - CT)
(202) 224-4041
http://www.murphy.senate.gov/contact

Delaware
Carper, Thomas R. - (D - DE)
(202) 224-2441
http://www.carper.senate.gov/public/index.cfm/email-senator-carper

Coons, Christopher A. - (D - DE)
(202) 224-5042
http://www.coons.senate.gov/contact/

Florida
Nelson, Bill - (D - FL)
(202) 224-5274
http://www.billnelson.senate.gov/contact-bill

Rubio, Marco - (R - FL)
(202) 224-3041
http://www.rubio.senate.gov/public/index.cfm/email-senator-rubio?p=Contact

Georgia
Isakson, Johnny - (R - GA)
(202) 224-3643
http://www.isakson.senate.gov/public/index.cfm/email-me

Perdue, David - (R - GA)
(202) 224-3521
http://www.perdue.senate.gov/content/contact-david

Hawaii
Hirono, Mazie K. - (D - HI)
(202) 224-6361
http://www.hirono.senate.gov/contact/email

Schatz, Brian - (D - HI)
(202) 224-3934
http://www.schatz.senate.gov/contact

Idaho
Crapo, Mike - (R - ID)
(202) 224-6142
http://www.crapo.senate.gov/contact/email.cfm

Risch, James E. - (R - ID)
(202) 224-2752
http://www.risch.senate.gov/public/index.cfm/email

Illinois
Durbin, Richard J. - (D - IL)
(202) 224-2152
http://www.durbin.senate.gov/contact/email

Kirk, Mark - (R - IL)
(202) 224-2854
http://www.kirk.senate.gov/?p=comment_on_legislation

Indiana
Coats, Daniel - (R - IN)
(202) 224-5623
http://www.coats.senate.gov/contact/

Donnelly, Joe - (D - IN)
(202) 224-4814
http://www.donnelly.senate.gov/contact/email-joe

Iowa
Ernst, Joni - (R - IA)
(202) 224-3254
http://www.ernst.senate.gov/content/contact-joni

Grassley, Chuck - (R - IA)
(202) 224-3744
http://www.grassley.senate.gov/constituents/questions-and-comments

Kansas
Moran, Jerry - (R - KS)
(202) 224-6521
http://www.moran.senate.gov/public/index.cfm/e-mail-jerry

Roberts, Pat - (R - KS)
(202) 224-4774
http://www.roberts.senate.gov/public/index.cfm?p=EmailPat

Kentucky
McConnell, Mitch - (R - KY)
(202) 224-2541
http://www.mcconnell.senate.gov/public/index.cfm?p=ContactForm

Paul, Rand - (R - KY)
(202) 224-4343
http://www.paul.senate.gov/?p=contact

Louisiana
Cassidy, Bill - (R - LA)
(202) 224-5824
http://www.cassidy.senate.gov/content/contact-bill

Vitter, David - (R - LA)
(202) 224-4623
http://www.vitter.senate.gov/contact/email-senator-vitter

Maine
Collins, Susan M. - (R - ME)
(202) 224-2523
http://www.collins.senate.gov/public/index.cfm/email

King, Angus S., Jr. - (I - ME)
(202) 224-5344
http://www.king.senate.gov/contact

Maryland
Cardin, Benjamin L. - (D - MD)
(202) 224-4524
http://www.cardin.senate.gov/contact/

Mikulski, Barbara A. - (D - MD)
(202) 224-4654
http://www.mikulski.senate.gov/contact

Massachusetts
Markey, Edward J. - (D - MA)
(202) 224-2742
http://www.markey.senate.gov/contact

Warren, Elizabeth - (D - MA)
(202) 224-4543
http://www.warren.senate.gov/?p=email_senator

Michigan
Peters, Gary - (D - MI)
(202) 224-6221
http://www.peters.senate.gov/content/contact-gary

Stabenow, Debbie - (D - MI)
(202) 224-4822
http://www.stabenow.senate.gov/?p=contact

Minnesota
Franken, Al - (D - MN)
(202) 224-5641
http://www.franken.senate.gov/?p=email_al

Klobuchar, Amy - (D - MN)
(202) 224-3244
http://www.klobuchar.senate.gov/public/email-amy

Mississippi
Cochran, Thad - (R - MS)
(202) 224-5054
http://www.cochran.senate.gov/public/index.cfm/email-me

Wicker, Roger F. - (R - MS)
(202) 224-6253
http://www.wicker.senate.gov/public/index.cfm/contact

Missouri
Blunt, Roy - (R - MO)
(202) 224-5721
http://www.blunt.senate.gov/public/index.cfm/contact-roy

McCaskill, Claire - (D - MO)
(202) 224-6154
http://www.mccaskill.senate.gov/contact

Montana
Daines, Steve - (R - MT)
(202) 224-2651
http://www.daines.senate.gov/content/contact-steve

Tester, Jon - (D - MT)
(202) 224-2644
http://www.tester.senate.gov/?p=email_senator

Nebraska
Fischer, Deb - (R - NE)
(202) 224-6551
http://www.fischer.senate.gov/public/?p=email-deb

Sasse, Ben - (R - NE)
(202) 224-4224
http://www.sasse.senate.gov/content/contact-ben

Nevada
Heller, Dean - (R - NV)
(202) 224-6244
http://www.heller.senate.gov/public/index.cfm/contact-form

Reid, Harry - (D - NV)
(202) 224-3542
http://www.reid.senate.gov/contact

New Hampshire
Ayotte, Kelly - (R - NH)
(202) 224-3324
http://www.ayotte.senate.gov/?p=contact

Shaheen, Jeanne - (D - NH)
(202) 224-2841
http://www.shaheen.senate.gov/contact/

New Jersey
Booker, Cory A. - (D - NJ)
(202) 224-3224
http://www.booker.senate.gov/?p=contact

Menendez, Robert - (D - NJ)
(202) 224-4744
http://www.menendez.senate.gov/contact

New Mexico
Heinrich, Martin - (D - NM)
(202) 224-5521
http://www.heinrich.senate.gov/contact/write-martin

Udall, Tom - (D - NM)
(202) 224-6621
http://www.tomudall.senate.gov/?p=contact

New York
Gillibrand, Kirsten E. - (D - NY)
(202) 224-4451
http://www.gillibrand.senate.gov/contact/

Schumer, Charles E. - (D - NY)
(202) 224-6542
http://www.schumer.senate.gov/contact/email-chuck

North Carolina
Burr, Richard - (R - NC)
(202) 224-3154
http://www.burr.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm

Tillis, Thom - (R - NC)
(202) 224-6342
http://www.tillis.senate.gov/content/contact-thom

North Dakota
Heitkamp, Heidi - (D - ND)
(202) 224-2043
http://www.heitkamp.senate.gov/public/index.cfm/email-heidi

Hoeven, John - (R - ND)
(202) 224-2551
http://www.hoeven.senate.gov/public/index.cfm/email-the-senator

Ohio
Brown, Sherrod - (D - OH)
(202) 224-2315
http://www.brown.senate.gov/contact

Portman, Rob - (R - OH)
(202) 224-3353
https://www.portman.senate.gov/public/index.cfm/contact-form

Oklahoma
Inhofe, James M. - (R - OK)
(202) 224-4721
http://www.inhofe.senate.gov/contact

Lankford, James - (R - OK)
(202) 224-5754
http://www.lankford.senate.gov/content/contact-james

Oregon
Merkley, Jeff - (D - OR)
(202) 224-3753
http://www.merkley.senate.gov/contact

Wyden, Ron - (D - OR)
(202) 224-5244
http://www.wyden.senate.gov/contact

Pennsylvania
Casey, Robert P., Jr. - (D - PA)
(202) 224-6324
http://www.casey.senate.gov/contact

Toomey, Patrick J. - (R - PA)
(202) 224-4254
http://www.toomey.senate.gov/?p=contact

Rhode Island
Reed, Jack - (D - RI)
(202) 224-4642
http://www.reed.senate.gov/contact/email

Whitehouse, Sheldon - (D - RI)
(202) 224-2921
http://www.whitehouse.senate.gov/contact/

South Carolina
Graham, Lindsey - (R - SC)
(202) 224-5972
http://www.lgraham.senate.gov/public/index.cfm?FuseAction=Contact.EmailSenatorGraham

Scott, Tim - (R - SC)
(202) 224-6121
http://www.scott.senate.gov/contact/email-me

South Dakota
Rounds, Mike - (R - SD)
(202) 224-5842
http://www.rounds.senate.gov/content/contact-mike

Thune, John - (R - SD)
(202) 224-2321
http://www.thune.senate.gov/public/index.cfm/contact

Tennessee
Alexander, Lamar - (R - TN)
(202) 224-4944
http://www.alexander.senate.gov/public/index.cfm/email

Corker, Bob - (R - TN)
(202) 224-3344
http://www.corker.senate.gov/public/index.cfm/emailme

Texas
Cornyn, John - (R - TX)
(202) 224-2934
http://www.cornyn.senate.gov/public/index.cfm?p=ContactForm

Cruz, Ted - (R - TX)
(202) 224-5922
http://www.cruz.senate.gov/?p=email_senator

Utah
Hatch, Orrin G. - (R - UT)
(202) 224-5251
http://www.hatch.senate.gov/public/index.cfm/email-orrin

Lee, Mike - (R - UT)
(202) 224-5444
http://www.lee.senate.gov/public/index.cfm/contact

Vermont
Leahy, Patrick J. - (D - VT)
(202) 224-4242
https://www.leahy.senate.gov/contact/

Sanders, Bernard - (I - VT)
(202) 224-5141
http://www.sanders.senate.gov/contact/comment

Virgina
Kaine, Tim - (D - VA)
(202) 224-4024
https://www.kaine.senate.gov/contact

Warner, Mark R. - (D - VA)
(202) 224-2023
http://www.warner.senate.gov/public/index.cfm?p=ContactPage

Washington
Cantwell, Maria - (D - WA)
(202) 224-3441
http://www.cantwell.senate.gov/public/index.cfm/email-maria

Murray, Patty - (D - WA)
(202) 224-2621
http://www.murray.senate.gov/public/index.cfm/contactme

West Virgina
Capito, Shelley Moore - (R - WV)
(202) 224-6472
http://www.capito.senate.gov/content/contact-shelley

Manchin, Joe, III - (D - WV)
(202) 224-3954
http://www.manchin.senate.gov/public/index.cfm/contact-form

Wisconsin
Baldwin, Tammy - (D - WI)
(202) 224-5653
http://www.baldwin.senate.gov/contact

Johnson, Ron - (R - WI)
(202) 224-5323
http://www.ronjohnson.senate.gov/public/index.cfm/email-the-senator

Wyoming
Barrasso, John - (R - WY)
(202) 224-6441
http://www.barrasso.senate.gov/public/index.cfm/contact-form

Enzi, Michael B. - (R - WY)
(202) 224-3424
http://www.enzi.senate.gov/public/index.cfm/e-mail-senator-enzi


Keep fighting for people power!

Politicians and rich CEOs shouldn't make all the decisions. Today we ask you to help keep Change.org free and independent. Our job as a public benefit company is to help petitions like this one fight back and get heard. If everyone who saw this chipped in monthly we'd secure Change.org's future today. Help us hold the powerful to account. Can you spare a minute to become a member today?

I'll power Change with $5 monthlyPayment method

Discussion

Please enter a comment.

We were unable to post your comment. Please try again.