Petition update
A Big Push to All U.S. Senators
Mar 13, 2015 — Nice boost in signatures this week. Keep up the good work!
Our campaign is receiving emails from supporters telling us Senators are responding to their emails. The Senate has jurisdiction over the FDA. Therefore, getting our U.S. Senators to take action is a very important facet of our campaign. This weekend, call or email both of your U.S. Senators (contact info provided below).
Thank you for all you're doing to make this campaign so successful,
Jehad Majed (jmajed@mac.com), Nick Grillo (gm6nick@gmail.com), Bethany Wolfe, and the Torrico Family
MESSAGE TO US SENATORS
[Share your personal story or just state that you are contacting the Senator on behalf of the ALS Community].
The 2012 FDASI Act gave the FDA authority to deviate from rigid rules and demonstrate flexibility in providing the terminally ill access to new treatment options. For the past month, thousands of people have been urging the FDA to grant Accelerated Approval with post-marketing requirements for a new ALS treatment, Genervon’s GM604. This request is based on:
1) Demonstrated Safety
2) Evidence of Efficacy
3) GM604 meets the criteria for the Accelerated Approval Program (AAP):
a. Surrogate Endpoints: Genervon's Phase 2A trials showed improvements in the treated group in both clinical measurements and multiple biomarker measurements.
b. Urgent and Unmet Need: No new treatment for ALS has been approved since Rilutek in 1995, which extends life expectancy by a few months with no improvement to quality of life. Another multi-year clinical trial for GM604 is a death sentence for more than 500,000 people.
Our FDA is under the jurisdiction of the U.S. Senate. Therefore, it is ultimately our elected officials’ responsibility to ensure that the right of life and the personal liberties of terminally ill patients are protected. This includes the right of these patients to access potentially life saving treatments.
On my behalf, please contact the FDA today and tell them that you support our self-advocacy and understand the urgency in getting potentially life-saving treatments to patients with ALS. Also, please ensure that Genervon’s GM604 is being given full and fair consideration for the Accelerated Approval Program.
Alabama
Sessions, Jeff - (R - AL)
(202) 224-4124
http://www.sessions.senate.gov/public/index.cfm/contact-jeff
Shelby, Richard C. - (R - AL)
(202) 224-5744
http://www.shelby.senate.gov/public/index.cfm/emailsenatorshelby
Alaska
Murkowski, Lisa - (R - AK)
202) 224-6665
http://www.murkowski.senate.gov/public/index.cfm/emaillisa
Sullivan, Daniel - (R - AK)
(202) 224-3004
http://www.sullivan.senate.gov/content/contact-dan
Arizona
Flake, Jeff - (R - AZ)
(202) 224-4521
http://www.flake.senate.gov/public/index.cfm/contact-jeff
McCain, John - (R - AZ)
(202) 224-2235
http://www.mccain.senate.gov/public/index.cfm/contact-form
Arkansas
Boozman, John - (R - AR)
(202) 224-4843
http://www.boozman.senate.gov/public/index.cfm/e-mail-me
Cotton, Tom - (R - AR)
202) 224-2353
http://www.cotton.senate.gov/content/contact-tom
California
Boxer, Barbara - (D - CA)
(202) 224-3553
https://www.boxer.senate.gov/contact/shareyourviews.html
Feinstein, Dianne - (D - CA)
(202) 224-3841
https://www.feinstein.senate.gov/public/index.cfm/e-mail-me
Colorado
Bennet, Michael F. - (D - CO)
(202) 224-5852
http://www.bennet.senate.gov/?p=contact
Gardner, Cory - (R - CO)
(202) 224-5941
http://www.gardner.senate.gov/content/contact-cory
Connecticut
Blumenthal, Richard - (D - CT)
(202) 224-2823
https://www.blumenthal.senate.gov/contact
Murphy, Christopher - (D - CT)
(202) 224-4041
http://www.murphy.senate.gov/contact
Delaware
Carper, Thomas R. - (D - DE)
(202) 224-2441
http://www.carper.senate.gov/public/index.cfm/email-senator-carper
Coons, Christopher A. - (D - DE)
(202) 224-5042
http://www.coons.senate.gov/contact/
Florida
Nelson, Bill - (D - FL)
(202) 224-5274
http://www.billnelson.senate.gov/contact-bill
Rubio, Marco - (R - FL)
(202) 224-3041
http://www.rubio.senate.gov/public/index.cfm/email-senator-rubio?p=Contact
Georgia
Isakson, Johnny - (R - GA)
(202) 224-3643
http://www.isakson.senate.gov/public/index.cfm/email-me
Perdue, David - (R - GA)
(202) 224-3521
http://www.perdue.senate.gov/content/contact-david
Hawaii
Hirono, Mazie K. - (D - HI)
(202) 224-6361
http://www.hirono.senate.gov/contact/email
Schatz, Brian - (D - HI)
(202) 224-3934
http://www.schatz.senate.gov/contact
Idaho
Crapo, Mike - (R - ID)
(202) 224-6142
http://www.crapo.senate.gov/contact/email.cfm
Risch, James E. - (R - ID)
(202) 224-2752
http://www.risch.senate.gov/public/index.cfm/email
Illinois
Durbin, Richard J. - (D - IL)
(202) 224-2152
http://www.durbin.senate.gov/contact/email
Kirk, Mark - (R - IL)
(202) 224-2854
http://www.kirk.senate.gov/?p=comment_on_legislation
Indiana
Coats, Daniel - (R - IN)
(202) 224-5623
http://www.coats.senate.gov/contact/
Donnelly, Joe - (D - IN)
(202) 224-4814
http://www.donnelly.senate.gov/contact/email-joe
Iowa
Ernst, Joni - (R - IA)
(202) 224-3254
http://www.ernst.senate.gov/content/contact-joni
Grassley, Chuck - (R - IA)
(202) 224-3744
http://www.grassley.senate.gov/constituents/questions-and-comments
Kansas
Moran, Jerry - (R - KS)
(202) 224-6521
http://www.moran.senate.gov/public/index.cfm/e-mail-jerry
Roberts, Pat - (R - KS)
(202) 224-4774
http://www.roberts.senate.gov/public/index.cfm?p=EmailPat
Kentucky
McConnell, Mitch - (R - KY)
(202) 224-2541
http://www.mcconnell.senate.gov/public/index.cfm?p=ContactForm
Paul, Rand - (R - KY)
(202) 224-4343
http://www.paul.senate.gov/?p=contact
Louisiana
Cassidy, Bill - (R - LA)
(202) 224-5824
http://www.cassidy.senate.gov/content/contact-bill
Vitter, David - (R - LA)
(202) 224-4623
http://www.vitter.senate.gov/contact/email-senator-vitter
Maine
Collins, Susan M. - (R - ME)
(202) 224-2523
http://www.collins.senate.gov/public/index.cfm/email
King, Angus S., Jr. - (I - ME)
(202) 224-5344
http://www.king.senate.gov/contact
Maryland
Cardin, Benjamin L. - (D - MD)
(202) 224-4524
http://www.cardin.senate.gov/contact/
Mikulski, Barbara A. - (D - MD)
(202) 224-4654
http://www.mikulski.senate.gov/contact
Massachusetts
Markey, Edward J. - (D - MA)
(202) 224-2742
http://www.markey.senate.gov/contact
Warren, Elizabeth - (D - MA)
(202) 224-4543
http://www.warren.senate.gov/?p=email_senator
Michigan
Peters, Gary - (D - MI)
(202) 224-6221
http://www.peters.senate.gov/content/contact-gary
Stabenow, Debbie - (D - MI)
(202) 224-4822
http://www.stabenow.senate.gov/?p=contact
Minnesota
Franken, Al - (D - MN)
(202) 224-5641
http://www.franken.senate.gov/?p=email_al
Klobuchar, Amy - (D - MN)
(202) 224-3244
http://www.klobuchar.senate.gov/public/email-amy
Mississippi
Cochran, Thad - (R - MS)
(202) 224-5054
http://www.cochran.senate.gov/public/index.cfm/email-me
Wicker, Roger F. - (R - MS)
(202) 224-6253
http://www.wicker.senate.gov/public/index.cfm/contact
Missouri
Blunt, Roy - (R - MO)
(202) 224-5721
http://www.blunt.senate.gov/public/index.cfm/contact-roy
McCaskill, Claire - (D - MO)
(202) 224-6154
http://www.mccaskill.senate.gov/contact
Montana
Daines, Steve - (R - MT)
(202) 224-2651
http://www.daines.senate.gov/content/contact-steve
Tester, Jon - (D - MT)
(202) 224-2644
http://www.tester.senate.gov/?p=email_senator
Nebraska
Fischer, Deb - (R - NE)
(202) 224-6551
http://www.fischer.senate.gov/public/?p=email-deb
Sasse, Ben - (R - NE)
(202) 224-4224
http://www.sasse.senate.gov/content/contact-ben
Nevada
Heller, Dean - (R - NV)
(202) 224-6244
http://www.heller.senate.gov/public/index.cfm/contact-form
Reid, Harry - (D - NV)
(202) 224-3542
http://www.reid.senate.gov/contact
New Hampshire
Ayotte, Kelly - (R - NH)
(202) 224-3324
http://www.ayotte.senate.gov/?p=contact
Shaheen, Jeanne - (D - NH)
(202) 224-2841
http://www.shaheen.senate.gov/contact/
New Jersey
Booker, Cory A. - (D - NJ)
(202) 224-3224
http://www.booker.senate.gov/?p=contact
Menendez, Robert - (D - NJ)
(202) 224-4744
http://www.menendez.senate.gov/contact
New Mexico
Heinrich, Martin - (D - NM)
(202) 224-5521
http://www.heinrich.senate.gov/contact/write-martin
Udall, Tom - (D - NM)
(202) 224-6621
http://www.tomudall.senate.gov/?p=contact
New York
Gillibrand, Kirsten E. - (D - NY)
(202) 224-4451
http://www.gillibrand.senate.gov/contact/
Schumer, Charles E. - (D - NY)
(202) 224-6542
http://www.schumer.senate.gov/contact/email-chuck
North Carolina
Burr, Richard - (R - NC)
(202) 224-3154
http://www.burr.senate.gov/public/index.cfm?FuseAction=Contact.ContactForm
Tillis, Thom - (R - NC)
(202) 224-6342
http://www.tillis.senate.gov/content/contact-thom
North Dakota
Heitkamp, Heidi - (D - ND)
(202) 224-2043
http://www.heitkamp.senate.gov/public/index.cfm/email-heidi
Hoeven, John - (R - ND)
(202) 224-2551
http://www.hoeven.senate.gov/public/index.cfm/email-the-senator
Ohio
Brown, Sherrod - (D - OH)
(202) 224-2315
http://www.brown.senate.gov/contact
Portman, Rob - (R - OH)
(202) 224-3353
https://www.portman.senate.gov/public/index.cfm/contact-form
Oklahoma
Inhofe, James M. - (R - OK)
(202) 224-4721
http://www.inhofe.senate.gov/contact
Lankford, James - (R - OK)
(202) 224-5754
http://www.lankford.senate.gov/content/contact-james
Oregon
Merkley, Jeff - (D - OR)
(202) 224-3753
http://www.merkley.senate.gov/contact
Wyden, Ron - (D - OR)
(202) 224-5244
http://www.wyden.senate.gov/contact
Pennsylvania
Casey, Robert P., Jr. - (D - PA)
(202) 224-6324
http://www.casey.senate.gov/contact
Toomey, Patrick J. - (R - PA)
(202) 224-4254
http://www.toomey.senate.gov/?p=contact
Rhode Island
Reed, Jack - (D - RI)
(202) 224-4642
http://www.reed.senate.gov/contact/email
Whitehouse, Sheldon - (D - RI)
(202) 224-2921
http://www.whitehouse.senate.gov/contact/
South Carolina
Graham, Lindsey - (R - SC)
(202) 224-5972
http://www.lgraham.senate.gov/public/index.cfm?FuseAction=Contact.EmailSenatorGraham
Scott, Tim - (R - SC)
(202) 224-6121
http://www.scott.senate.gov/contact/email-me
South Dakota
Rounds, Mike - (R - SD)
(202) 224-5842
http://www.rounds.senate.gov/content/contact-mike
Thune, John - (R - SD)
(202) 224-2321
http://www.thune.senate.gov/public/index.cfm/contact
Tennessee
Alexander, Lamar - (R - TN)
(202) 224-4944
http://www.alexander.senate.gov/public/index.cfm/email
Corker, Bob - (R - TN)
(202) 224-3344
http://www.corker.senate.gov/public/index.cfm/emailme
Texas
Cornyn, John - (R - TX)
(202) 224-2934
http://www.cornyn.senate.gov/public/index.cfm?p=ContactForm
Cruz, Ted - (R - TX)
(202) 224-5922
http://www.cruz.senate.gov/?p=email_senator
Utah
Hatch, Orrin G. - (R - UT)
(202) 224-5251
http://www.hatch.senate.gov/public/index.cfm/email-orrin
Lee, Mike - (R - UT)
(202) 224-5444
http://www.lee.senate.gov/public/index.cfm/contact
Vermont
Leahy, Patrick J. - (D - VT)
(202) 224-4242
https://www.leahy.senate.gov/contact/
Sanders, Bernard - (I - VT)
(202) 224-5141
http://www.sanders.senate.gov/contact/comment
Virgina
Kaine, Tim - (D - VA)
(202) 224-4024
https://www.kaine.senate.gov/contact
Warner, Mark R. - (D - VA)
(202) 224-2023
http://www.warner.senate.gov/public/index.cfm?p=ContactPage
Washington
Cantwell, Maria - (D - WA)
(202) 224-3441
http://www.cantwell.senate.gov/public/index.cfm/email-maria
Murray, Patty - (D - WA)
(202) 224-2621
http://www.murray.senate.gov/public/index.cfm/contactme
West Virgina
Capito, Shelley Moore - (R - WV)
(202) 224-6472
http://www.capito.senate.gov/content/contact-shelley
Manchin, Joe, III - (D - WV)
(202) 224-3954
http://www.manchin.senate.gov/public/index.cfm/contact-form
Wisconsin
Baldwin, Tammy - (D - WI)
(202) 224-5653
http://www.baldwin.senate.gov/contact
Johnson, Ron - (R - WI)
(202) 224-5323
http://www.ronjohnson.senate.gov/public/index.cfm/email-the-senator
Wyoming
Barrasso, John - (R - WY)
(202) 224-6441
http://www.barrasso.senate.gov/public/index.cfm/contact-form
Enzi, Michael B. - (R - WY)
(202) 224-3424
http://www.enzi.senate.gov/public/index.cfm/e-mail-senator-enzi
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