Petition Closed

Please use your influence, connections, and substantial voice to press for more research into a different life expectancy for people of color who have Down syndrome.

Previous research  has shown that people of color who have Down syndrome have a significantly shorter life expectancy than their peers who are Caucasion. The limited research on this topic is old and does not address potential causes. As a community, we should be pressing for more information.

In a recent article Global spokesperson Beverly Johnson is quoted:

"There's a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old." 

Please make this issue a top priority and help us advocate around this issue.

This petition was delivered to:
  • David Tolleson, Executive Director
    National Down Syndrome Congress
  • Michelle Sie Whitten
    Global Down Syndrome Foundation
  • Jon Colman
    National Down Syndrome Society
  • Michelle Slape
    International Down Syndrome Coalition

The Road We've Shared started this petition with a single signature, and now has 146 supporters. Start a petition today to change something you care about.