- National Down Syndrome CongressDavid Tolleson, Executive Director
- Global Down Syndrome FoundationMichelle Sie Whitten
- National Down Syndrome SocietyJon Colman
- International Down Syndrome CoalitionMichelle Slape
Please use your influence, connections, and substantial voice to press for more research into a different life expectancy for people of color who have Down syndrome.
Previous research has shown that people of color who have Down syndrome have a significantly shorter life expectancy than their peers who are Caucasion. The limited research on this topic is old and does not address potential causes. As a community, we should be pressing for more information.
In a recent article Global spokesperson Beverly Johnson is quoted:
"There's a remarkable disparity between children of color who get Down syndrome — life expectancy is age 23 — and non-black children with Down syndrome — life expectancy is 63 years old."
Please make this issue a top priority and help us advocate around this issue.
- David Tolleson, Executive Director
National Down Syndrome Congress
- Michelle Sie Whitten
Global Down Syndrome Foundation
- Jon Colman
National Down Syndrome Society
- Michelle Slape
International Down Syndrome Coalition
Please use your influence, connections, and substantial voice to press for more research into the reason for a different life expectancy for people of color who have Down syndrome. We believe this should be a top priority for advocacy in the Down syndrome community.
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