Liberamento do Spinraza no SUS!

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The spinraza remedy is the only medicine capable of treating Spinal Muscular Atrophy (AME). AME is a neurodegenerative disease with an autosomal recessive inheritance, that is that both progenitors, father and mother, have the gene for the disease. The AME impairs the simpler voluntary movements such as: holding the head, sitting and walking. For a year of treatment it is necessary six doses of the medicine whose cost exceeds more than 2 million reais. With the release of the drug in SUS many lives will be saved and many families will be helped.