AS SEEN ON ELLEN: Increase federal funding for pediatric cancer research by Lilly Bumpus

AS SEEN ON ELLEN: Increase federal funding for pediatric cancer research by Lilly Bumpus

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Lilly Bumpus started this petition to President Joseph R. Biden and

As seen on ELLEN on September 17!

We the People of the United States of America demand a federal funding increase toward pediatric cancer research.

One in 285 American children will be diagnosed with cancer before their 19th birthday.

Out of the billions of dollars of federal funding provided for cancer research, a mere 3.8% is reserved for the study and advancement of treatment for childhood cancers.

We believe our future is worth more than 3.8%.

Childhood cancer is the leading cause of disease-related death in children in the United States, and every two minutes a family receives the devastating news of a new diagnosis.

Childhood cancer is not rare, however, it is unique in the sense that it presents a fundamentally different set of challenges than adult-onset disease. Without proper research funding, the young, developing bodies of our children are often exposed to the recycled adult treatment protocol. These life-saving measures of treatment wreak havoc on the developing systems, leaving children with unanticipated and long-term physical, emotional, and cognitive complications.

TODAY IN THE UNITED STATES:

  • 80% of childhood cancer survivors do not live past the age of 45.
  • More than 95% of childhood cancer survivors have significant health-related issues caused by treatment, usually another form of cancer.
  • There is no form of extended cell replicated therapies - meaning it takes 1 million active cancer cells to be detected for a child to be accurately diagnosed.
  • Because of the protocol and medication being outdated, most children are diagnosed in the late stages of cancer with little to no survival rate.
  • Female childhood cancer survivors who were treated with chemotherapy— even if they did not receive radiation treatments to their chest — are six times more likely than the general population to be diagnosed with breast cancer later in life. For those who did receive chest radiation, that chance increases exponentially and is on par with those who have the BRCA1 or BRCA2 mutations.
  • There are forms of childhood cancer (DIPG) that have a 0% survival rate because they have 0% funding for research, despite the diagnosis rate steadily doubling for the last 15 years.

We the People, lead by Lilly Bumpus, a nine-year-old cancer survivor and international activist, call upon the Biden Administration to enact immediate resolution for the following:

  • We demand the White House and the National Cancer Research Funding Board to reevaluate the research funding amount for childhood cancer, as it currently receives less than 4% of annual funding and continues to be the country's number one lowest funded form of cancer research.
  • We demand additional childhood cancer research to ensure our children who are diagnosed have a better chance of surviving treatment. One in four children diagnosed with cancer does not survive past five years.
  • We demand research for childhood cancer to have the same robust toolset adults have to fight this disease, with matched resources to provide comprehensive screening, preventative care, and treatment options.
  • We demand federal recognition that more children are dying from outdated adult form cancer treatment than cancer itself.
  • We demand the prioritization of pediatric drug research. Hundreds of cancer drugs have been developed and approved for adult use by the FDA. As of 2020, a mere 34 drugs for use in the treatment of childhood cancers is approved. 28 of those drugs were originally approved only for adult use. Today, we have only six drugs that were approved in the first instance for use in cancer treatment for children.

It is estimated that there will be 13.7 million cases of childhood cancer between 2020-2050. Unless there are major improvements surrounding the priorities of cancer research in America, of this, 45% will go undiagnosed and 11.1 million Americans will die as a result of childhood cancer.

American children in the land of the free are being silenced, not due to lack of awareness, but budgetary decisions made at the federal level. It is beyond time to move past awareness campaigns and glossy projections of hope, but instead it is time to enact change and invest in the health of our nation's future.

President Biden, Vice President Harris - will you stand alongside us and save 11 million children?

0 have signed. Let’s get to 75,000!
At 75,000 signatures, this petition becomes one of the top signed on Change.org!