We Need Services for those with Type 1 Diabetes and an Eating Disorder

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Eating disorders in type 1 diabetes (T1ED) are devastating.  Recently insulin omission for weight control or 'diabulimia', has been featured by the BBC in the  documentary and radio newsbeat piece: 'Diabulimia: the worlds most dangerous eating disorder' ( you can watch here https://www.youtube.com/watch?v=tSLjM6cZaTo

Diabulimia is thought to affect almost half of women with T1D between the ages of 15 and 30 and rates in men are increasing rapidly, however there is no way to tell precisely how many suffer, as there is no official diagnosis, screening method or treatment programme. All we really know is that traditional models of eating disorder therapy don't work and often make the patient worse. This has a horrendous impact on the lives of those who deal with Diabulimia and their loved ones.

Diabulimia can leave you crippled, blind, infertile, on dialysis and it shortens life expectancy by around 25 years.  

We are petitioning for the NHS to increase services that deal with T1ED, to provide inpatient beds and outpatient units where both clinical and psychological aspects of T1 can be addressed properly.  We are asking that services that do address diabulimia, such as the dedicated clinic at Kings College Hospital and the Eden Unit in Aberdeen be resourced appropriately and used as hubs of expertise. 

We need further development of specialist services. We are dying without them.

This petition is memory of all we have lost over the last decade. None of them are forgotten. 

 



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