Treat PPROM as it states as Emergency - Saving Babies Lives
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Simple words, we want all of our patients to be treated as a emergency and ensure all patients given the right diagnosis and management plan before being sent home.
If you watch our YOU Tube video, link is here: Our Awareness Video where all babies survived PPROM all mums lost their waters before 24 weeks of pregnancy, all babies survived
Watch our YOU Tube video, interview with our mums who lose their babies Our awareness video where babies have not survived
Many mums are losing babies not just under 24 weeks, but over 30 weeks, even at 36 weeks, current guidelines recommend delivery at 34 weeks due to the risk of chorioamnionitis but parents are not being informed of this, and are not involved with the decision making. Doctors are pushing past 34 weeks in hope this will avoid a neonatal visit. Problem we have is these mums are not always given a management plan and infections are being missed and mums are told every thing is ok, when it is NOT OK.
Sadly in some of our cases, some mums can no longer have a baby. Had these mum's been induced 1 week or even days before, then these mums would be holding a healthy baby and not a empty box.
The ROCG Green–top Guideline No. 44 on Preterm Prelabour Rupture of Membranes recommend the following,
Delivery should be considered at 34 weeks of gestation. Where expectant management is considered beyond this gestation, women should be informed of the increased risk of chorioamnionitis and the decreased risk of respiratory problems in the neonate.
Personally we asked the Ombudsman to investigate our care, they told us they found mistakes in our care, but refused to carry out a investigation into why we were failed, since our complaint 5 years ago, more parents have lost their babies to PPROM / SRM / rupture of membranes at the same hospital trusts as ourselves. And we are having families throughout the country, both with angel and miracle babies, asking us why no one gave them any choices, to date all of our hard efforts to gaining change is being dismissed.
our webpage, www.little-heartbeats.org.uk
Which is why we need you to sign and share......
This is what we want....
Follow PPROM ROCG Guidelines and inform their patients of their hospital policy on Preterm Pre-labour Rupture Of Membranes before 37 weeks of pregnancy, and consider the mental health of parents experiencing this.
PPROM Awareness - Preterm Pre-labour Rupture of Membranes before 37 weeks of pregnancy occurs in 2% of pregnancies, is associated with 40 % of preterm deliveries and can lead to significant morbidity and mortality.
Every day in the UK, a mother and baby’s voice is being ignored.
The medical guidance on PPROM from the Royal College of Obstetricians and Gynaecologists is being ignored. A PPROM happens in the UK every day.
Interventions are withheld until 24 weeks, and termination is regularly offered.
Other countries extend human rights to babies at 20 weeks gestation with interventions earlier. In fact, a baby born at this stage of pregnancy in other countries, including the USA and Australia, will receive both a birth certificate and a death certificate.
1. All PPROM mothers to be allowed to extend their human rights to the life of their baby.
2. Parents to be informed about PPROM at their first pregnancy appointment and when they suspect PPROM. The mother’s human right to continue the pregnancy should not conflict with the viability of the baby, as babies can survive if interventions are given. (This means respecting the mothers wishes regardless of gestation)
3. Indications of PPROM to be treated as an A&E emergency with the guideline treatment applied promptly.
4. More research and money invested into pre-birth and PPROM to take the UK into line with other countries and to educate staff and patients on this life changing condition.
5. Staff to adapt a paramount attitude and respect the patient’s decision.
6. The patient’s symptoms to be noted correctly and at the time of the event.
7. To walk out of hospital knowing that everything possible was done and that the correct procedures were carried out, with patients receiving the correct, up to date information.
8. Treatment to be given before 24 weeks regardless of gestation; we know that medical interventions can protect against infection, and give unborn babies the best chance of survival, while no intervention leads to more losses. Currently it’s a postcode lottery, and often the ones given interventions are surviving.
9. To inform patients once about termination. If they wish to carry on the pregnancy, we want the best care to be given to enable the mother to carry on past 30 weeks of pregnancy. To respect people's beliefs and respect their decisions.
10. Our voices to be heard, and better care, and we want you to know that the mother's health, both physical and mental, should be taken into account. Many end up with PTSD due to poor care and being misinformed of their situation or to a lack of information. This PTSD is often missed, which leaves the mother with recurring nightmares of the ordeal, in which a lot of cases experienced poor care, and in some cases led to the death of the babies. We say this as patients who have either lost babies to PPROM or have given birth to surviving babies after PPROM.
11. More investment and research into this subject, and more training given on how to deal with complications. We do have some good consultants and midwifes throughout the UK, but they do not always receive training in this area.
12. All women who experience this to be informed about the labour process; in fact we want pregnant women to be informed about the labour process at the 12 week check up, rather than waiting until 28 weeks, as many women give birth before this.
13. Investment in midwifery training to educate on high risk conditions such as PPROM
- If you want to know more, then follow us on the Little Heartbeats Facebook page, www.facebook.com/PpromAwarenessUK awareness on PPROM, with a webpage coming soon.
- In memory of all babies gone to soon due to PPROM, and for all our miracle babies and their parents.
- For all PPROM mothers on bed rest, not only praying for a miracle, but having to fight for the right care. This should not be the case in 21st century Britain.
- Save babies lives today and sign.
Fundraising for our babies, raised to date over £8k
The hope is to have our webpage up and running, and having that source, with the correct medical guidelines, along with real life stories for all outcomes.
Our Webpage will be coming soon, run by the parents that have experience this condition, we hope it makes a difference.
UCLH: Text; PROM49 with amount £1 to 70070
Tommy's: Text; PROM75 with amount £1 to 70070
Bliss: Text; PREM52 with amount £1 to 70070
Why I have started this petition
From my own personal experience, I am having to deal with a legal case, due to failings to getting my voice heard, I have asked numerous times for ADR to ensure that next time, both of my local medical providers, that they treat PPROM as emergency, instead in my case I was sent home. I have lots of nightmares, and cannot grieve until this is over.
We since had number of women, asking us for what the guidelines are, and in some cases, babies have survived, and most importantly regardless of the outcomes, patients have been grateful for the information and knowledge.
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