Legalize Medical Marijuana for Ehlers-Danlos Syndrome Patients in Iowa.

Legalize Medical Marijuana for Ehlers-Danlos Syndrome Patients in Iowa.

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Jade Taylor started this petition to Iowa State Senate and

EDS is a group of genetic disorders that affects connective tissues,
including the skin, joints, and blood vessels. Connective tissue is responsible for providing the strength and elasticity to the body’s underlying structures. Loose joints caused by Ehlers-Danlos syndrome are unstable and thus highly susceptible to dislocation. They can lead to severe, chronic pain and early-onset arthritis. The most severe form of this syndrome, called vascular EDS, causes the walls of blood vessels to rupture. It may also result in rupturing and hemorrhaging of the intestines, uterus, or other organs. It is estimated that roughly one in 5,000 people globally have some form of EDS. Of these, about one in 20,000 to 40,000 have the classical form, while one in 10,000 to 15,000 may have the most common hypermobility variant. Overall, there are nearly 1.5 million EDS sufferers worldwide.

Medical Marijuana provides relief in chronic pain for those who suffer from Ehlers-Danlos Syndrome. Many states already, including Colorado, have legalized Medical Cannabis for patients with both chronic pain and EDS.

I started this petition because...
I was diagnosed with EDS when I was 7 years old. Having EDS has had a significant impact on my life and my family. Because EDS is a genetic disorder, we found out that it came from my mother’s genetics, and she was then also diagnosed with EDS shortly after I was. My mother had always had issues as a child and young adult, but Ehlers-Danlos was not a well-researched diagnosis. I was lucky enough to be diagnosed at the age I was, so my doctor's, family, teachers, and I could be aware of specialized body needs and precautions. Unfortunately, there are yet to be more resources and medicines for those suffering from EDS. I have experienced pain in my joints and skeletal structure from the time I was about 5-6 years old. I had a difficult time walking because I would have what I called “popping” in my knees. At first, my mother didn’t suspect anything. I was a kid, and I could be over dramatic at times. But as my mother realized she had always experienced similar things when she was younger, she started to wonder. My sister, only a year younger than I, didn’t complain about any of the same issues I did on a daily basis. She decided to take me into a Pediatric Orthopedist in Des Moines, IA. We explained the different muscular and skeletal pains I had been having, including my “knee popping”. Unfortunately, the doctor could come to no conclusions and stated that the issues were “all in my head”. You can probably imagine how frustrated my mother was after hearing this from a doctor. She basically yelled at the poor guy and then we left. We didn’t give up, and my mother then took me to the University of Iowa Genetics Clinic. After examining me and listening to everything my mother had to say, the Geneticist asked my mother if she had ever heard of Ehlers-Danlos Syndrome, because he was pretty sure that's what I had. We went to Iowa city where both my mother and I were confirmed and diagnosed with EDS.

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