Petition update

Let's join to deliver the #RAREvolution petition on Rare Disease Day 2017

BLACKSWAN Foundation

Nov 2, 2016 — Hello everyone,

The theme for the Rare Disease Day 2017 (RDD 2017) is « Research ». On 28th February 2017, the tenth edition of RDD thousands of people from all over the world will come together to advocate for more research on rare diseases and to reaffirm its crucial role for the rare disease community. 

This is why this petition represents now an even greater opportunity and an important means to make the voices of patients, researchers and supporters be heard. Please continue to spread the word with your friends and help us deliver on 28th February 2017 a strong message to public authorities on the urgency of improving research for rare diseases.

RDs patients continue to face a range of inequalities that deprive them of timely and accurate diagnosis, treatments, opportunities and dignity. We believe that the global health community and governments should include rare disease research among their policy priorities as it represents the only hope for millions of rare individuals and their families. No right to health without rare diseases!

We take this opportunity also to inform you that the petition is now available in other languages (German, French and Italian), we hope this will help to reach more signers.

Thank you all for signing the #RAREvolution petition to support rare disease research. Please share it within your network, every signature counts!

BLACKSWAN Foundation

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