Help us to increase support for rare diseases research and save millions of people #RAREvolution

Danielle “Dani” Miller my sister in law! Most awesome Aunt my kids could ever ask for. One of the strongest people I know who was taken way to young bcuz of POMPE DISEASE. A horrible disease that affect babies most often. Then they don’t make it to adults. There is a 2nd type that is a later onset that she had. It started at around 30. She was gone b4 her 41st birthday. I miss her every single damn day since!!!!!

Heather Stamets, Inwood, WV, United States
3 years ago
Shared on Facebook