Infantile Spasms Awareness

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I want to create a worldwide awareness about this rare, yet not so rare, monstrous epilepsy disease called Infantile Spasms. It is catastrophic to a child and horrid for a parent. We are left with no support, no research or education, nor any fluent knowledge about what is taking our babies. How can I live? No child should have a silent death or fight a monster without an army. The children that won their battles, deserve testimonies to be shared. The children that lost her battles, deserve their Journeys to be shared. The parents walking, running, and climbing in this journey, fumbling, stumbling, and falling on this journey... they need to be reckoned as a force of powerful energy. Epilepsy kills just as high if not higher than cancer. Why is infantile spasms silent? Why?

 

A broken mother...

Faith

 

#DOMINANTDOMINICK #Dominick #Infantilespasmstookmychild #Infantilespasmsawareness #ISAW



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