Affordable drugs for deadly disease IPF
This petition had 203 supporters
According to a report by the World Health Organisation (WHO), the deaths due to lung diseases in India were on the rise accounting for 11 per cent of the total deaths. As many as 142.09 in every one lakh, died of one form of lung disease or the other giving India the dubious distinction of ranking first in lung disease deaths in the world.
Respiratory diseases like asthma, chronic obstructive pulmonary disease (COPD), Interstitial Lung Disease (ILD), pneumonia, tuberculosis (TB) are emerging as major health problems in the region.
According to studies, pulmonary fibrosis comprises 15 per cent of the pulmonary physician’s practice. The Indian Council of Medical Research (ICMR) has estimated the incidence of COPD as 5 per cent in Indian men.
Considering the challenges ILD IN INDIA is confronted with lack of resources, we need support from Government
ILD in India may, however, not be extrapolated to the rest of the world because of unique environmental, cultural, and genetic factors in India
The importance of eliciting a detailed diagnostic evaluation of ILD patients comprehensively is missing in India due to lack of infrastructure and support from Government.
An immediate need to alert and educate the general public and medical community that the vast majority of Indian patients living in India with new-onset ILD have a preventable disease and if not diagnosed and treated early, progresses to manifest irreversible pulmonary fibrosis and death.
The importance of ascertaining the accurate treatment and better management by bridging theknowledge gap between the general pulmonologist and experts in ILD in making an accurate diagnosis by creating more training courses and fellowship for doctors.
There is an imperative need to make available cheaper drugs to patients as current drugs are beyond the reach of even affluent people.
Most importantly Need for cheaper drugs as many of drugs available in market come with exhorted price tag literally costing around 2000 RS per day and these medicines has to be taken perpetually for life.
Like government has taken initiative to control the life saving drugs and stents important implants they should also consider the control of IPF DRUGS.
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