Save the lives of individuals with Cystic Fibrosis in Canada and fund the drugs that work!
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To our Canadian Government, Health Canada, and our Minister of Health,
Canadians living with Cystic Fibrosis (CF) cannot access drugs that could give them their lives. Statistics show that 1 in 3600 people are born with Cystic Fibrosis (CF) in Canada.
My niece, Katie, living with CF, has been a tireless warrior all her life pursuing her dreams and passions of healing animals, doing meaningful work, contributing to society. Now, without access to these new drugs (which have been promised to her by her doctors at Sick Children's Hospital as a near reality for the past 25 years), she cannot live fully. Without these drugs, her future is uncertain.
Life-changing medications like Trikafta and Symdeko are currently available but are costed out of reach for most Canadians. Some drugs, like Trikafta, are not yet approved in Canada. We need our government, Health Canada, and the pharmaceutical company, Vertex, to help us speed up approval of the use of Trikafta in Canada. Let's get Trikafta approved in Canada - research in the US shows it works. We need it now. We also need Symdeko to be accessible to all Canadians living with CF - let's make it accessible!
Trikafta, not only stabilizes CF but can improve lung capacity. If the USA can get approval in 90 days, Canada can too! Stop stalling Canada - the clock is ticking for Canadians like my niece, Katie.
The other medication, Symdeko, is available in Canada but costs $250,000 per year in our country which is wrong! Symdeko is a drug which stabilizes patients’ lung degeneration by fixing protein deficiencies - and it works!
Let's find a way as a country to get this medication to Canadians who need it - like my niece, Katie.
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