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Help save my Daughter's life by approving Kanuma (Sebelipase Alfa) in Canada!!!

This petition had 2,559 supporters


Kanuma (Sebelipase alfa), is a recombinant form of the human LAL enzyme. It is an investigational enzyme-replacement therapy under development for patients like my daughter with LAL-D, that cannot produce the enzyme on their own. We are unable to get this drug because Canada does not currently have a Orphan Drug Regulatory. We need Health Canada to approve this life saving drug and we also need to approve Health Canada’s Orphan Drug Regulatory Framework to support Canadians’ access to new drugs for rare diseases.


Today: Lisa is counting on you

Lisa Gearey needs your help with “HEALTH CANADA: Approve Sebelipase Alfa so that my daughters life can be saved.”. Join Lisa and 2,558 supporters today.