Awareness for Polycystic Ovarian Syndrome: Help Make Medication/Aid Covered & a Priority.
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“I am 24 years old and have never gotten my period naturally.”
“Wow, that’s kind of nice!” - a doctor I visited and never returned to.
I do not have my period unless I am on birth control.
I have taken time off from the pill for both financial reasons and due to mental health issues.
This lead to curiosity, and concern because
I still did not get my period even after years on the pill. My doctors assured me that it would not be the case. But it was and continues to be... With no change in treatment.
The main stressors for me were and still are:
1. Will I one day be able to have children?
2. Why must I/we pay for my birth control if I/we truly need it?
3. What else can I do to help my body?
It’s been a long and difficult struggle.
“Polycystic ovary syndrome (PCOS) is a set of symptoms due to elevated androgens (male hormones) in females. Signs and symptoms of PCOS include irregular or no menstrual periods, heavy periods, excess body and facial hair, acne, pelvic pain, difficulty getting pregnant, and patches of thick, darker, velvety skin. Associated conditions include type 2 diabetes, obesity, obstructive sleep apnea, heart disease, mood disorders, and endometrial cancer.”
6-10% of women have PCOS, known as a reproductive disorder.
But is it so much more, so much worse than that...
Only a few weeks ago had I found that the cysts in my ovaries were truly eggs that had not been able to reach their final step in the process of ‘one day becoming fertilized’.
This information was shown to me by chance, through the internet, as I simply came across it.
This was confirmed by a doctor.
I had been in deep pain once before, years ago. My abomin and gut felt as if Mother Nature had decided to turn up the cramps x100, when I didn’t even have my monthly gift at the time.
Medical professionals blamed the cysts, sent me home with nothing to help.
I wonder now if that was simply a reason to give, but not the true answer.
The pain went away after much time. But I often find myself frozen with fear that it will return.
Doctors have no way of aiding me other than with the ‘same prescription’ that I’ve been given since I was 14 years old. Which I now pay the whole fee for every month.
Many, many women share a story so similar to mine.
This scares me for those who do not have the ability to seek medical attention, have not been given the true amount of understanding and time to help themselves, and especially, for the women who have worse cases of PCOS.
I am amazed at the lack of knowledge and information when it comes to PCOS after experiencing my own journey through living with it.
I have had doctors act as if it was truly nothing.
Many family members not seeing the deep darkens that it had put me into.
My mother had difficulties getting pregnant. She as well has PCOS.
My sister does not.
But they both first had their periods at 11 & 12 years old.
My story, to them and other family members and friends, is nothing but a simple story responded to with a “Oh that sucks/I’m sorry to hear that/What does that even mean?”
I’ve accepted it.
I have spent years accepting that I must live through the unknown, until I decide to have children.
Accepting the extra time and money that I must spend on removing extra hair because of my own inability to grow past societies expectations.
Living through the random pains, cramps and spotting. Trying to alleviate the stress, telling myself “it’s my own normal”.
I have accepted the difference between my own feelings and that of a person without a life-long hormonal imbalance; controlling my actions when my emotions and thoughts take me to a place where I feel so out of place, buried, and alone.
Taking time to find peace within the difficulties of everything that has come with being in the body that I was given.
My wish is to bring attention to PCOS so that families, and the young sufferers, do not have to feel as I have felt. They will not see themselves as aliens, simply because they and their surroundings are forcibly ignorant to the syndrome they have.
This may not be the greatest problem the people face, but we most certainly need to make a change because we have the ability to.
I can only imagine the outcome of my life had I not been born in Canada, with the quality of life that I lead. Had I grown up in a country that had a medical system that left me to always live without a period or even without the chance to take birth control... Such would be devasting, just as it is to know that it is happening right now to millions.
And yet, here in Canada, where it is know that healthcare is free... PCOS treatments are not. And as shown above, there’s a disconnect between the severity and helpful treatment.
Therefore, I created this petition.
A petition to bring a bright light to the necessity of birth control and other medications, such as Metformin (which is free for those with diabetes) that must be paid for to treat the symptoms PCOS.
Viagra is covered by most plans.
This is appalling to me because I know that I will have a infinitely greater chance of cancer, Endometrial cancer especially, arises from the endometrium (the lining of the uterus or womb), without being on the pill.
And yet, erectile dysfunction or a man who simply wants a ‘better and longer-lasting’ erection is held at a higher priority...
If we stand up now, who knows what change will come to our own countries and others in desperate need of a difference.
I hope to inspire more studies of PCOS, encourage doctors/nurses/pharmacists to see how detrimental it is to truely help patients with this syndrome as if they were suffering from an illness that is held to a higher accord.
Hopefully one day soon, children will learn past the stigma so that we can help the human race be better than we are.
Polycystic Ovarian Syndrome is more than it seems. It’s victims deserve the peace from knowing that they no longer need to feel lesser because they must pay for something they NEED.
I am doing this for all women, for their lovers and husbands, their children and friends, myself and my family.
This is for all who have and still are negatively affected by PCOS and from the lack of understanding from their medical insurance company’s and governments.
Even if it stays the same... At least we tried.
Please share this petition and spread the love.
Be kind to yourself and to all around you.
Thank you for your time and consideration.
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