Help Approve life-saving medication
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In July 2016 both of my children were diagnosed with a rare genetic disorders so rare that they are the only ones that carry this mutation in Canada.Their bodies are rejecting protein, they have severe short stature and intellectual disability. 1 Month or two after one of my children fainted in school and both my children were diagnosed with hypoglycemia their bodies are producing too much sugar at once and causing their sugar to crash,so with that said now they have to get there sugar check every morning, afternoon and night even in school hours. They were tested for a medicine for hypoglycemia there were approved. The downfall was that it's not covered by my plan or any plan for that matter as it’s not Approved anywhere . Everyone that has diabetes nows that the needles and the strips to test your sugar are not cheap they only covered one box of 100 strip a year not to mention we have to supply the school also and the medicine itself for one child is $250 for two weeks. If the children don't have that medication their surgar could go so low that they could go into a coma. They really need that medication. I thank you from the bottom of my heart to help my children. I would be happy to answer any questions you may have. This medication would help my children grow and have a chance to a happy and normal life. Please my children are everything to me they need your help. greatly appreciated. Thank you
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