For Trigeminal Neuralgia to be recognised by the WHO & As a Disability & for research!

For Trigeminal Neuralgia to be recognised by the WHO & As a Disability & for research!

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Lorna Batters started this petition to HCMinister.MinistreSC@canada.ca and

Pain. Not like a headache, or even a migraine. Pain like my lower jaw is being ripped out, or teeth are, or somebody has just beaten my face to a pulp . I actually achieved my dream of singing in a band, had to quit when the pain just got too much.

I’ve just had my 9 year Anniversary of pain. For me it’s every second of every day; that sounds like an exaggeration, I can assure you it is not. I have been on painkillers, but they stopped working. I have a very high tolerance, so now I don’t have anything that helps. All the doctors/ oral surgeons etc I have seen just can’t explain/treat it. Oh, but they’ve managed to come up with a nickname for it..”the suicide disease”. That says it all.

This needs to be recognized as a disability and receive more funding for research.
It effects your speech, your ability to eat properly, your concentration and mental health. One “specialist “ said I have severe depression; no sh*t Sherlock. Try on my face for a while and see how chipper you are! This is not a new disease, but it’s one they can’t fix, so it just gets ignored. I wish I could ignore it. I have gotten to the stage that if I were told there was a cure, but after 2 weeks it would kill me, oh I’d take it. Those would be the most glorious 2 weeks of my life. I can’t even imagine what it’s like not to be in pain now. I just want to be “me” again; what brings on the pain? Existing.

 

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