Medicare number for TMS
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My name is Charlotte Sutton. I have Fibromyalgia. Fibromyalgia is a life long chronic pain condition, that causes excruciating pain, fatigue, insomnia, lose of feeling in my hands and feet, stomach issues, memory loss, concentration issues and countless other symptoms.
I first developed Fibromyalgia at 16 and it took over my life. I went from being a high achieving, social, happy person to using a wheelchair, spending months in hospitals and seriously contemplating how I would end my life just to make the pain stop. I went to about 30 different doctors, tried over 60 medications. My mum left her job to become my full time carer.
There is currently no cure for Fibromyalgia. I was sure I would spend the rest of my life in extreme pain. That all changed; one day I was lying in bed scrolling through Facebook when I came across a medical trial being run for people with Fibromyalgia through Monash University.
This trial was for TMS (trans-cranial magnetic stimulation), TMS has been used for depression and anxiety for decades but is now being explored for use in other areas such as Fibromyalgia, addiction, ADHD, autism, Parkinsons etc. Studies throughout the world have been very positive.
I decided that I couldn't take the risk of being in the placebo group so we found a private clinic that administered TMS for patient with anxiety and depression and they agreed to take me on as their first Fibromyalgia patient. The treatment was successful.
TMS has saved my life. TMS has given me my life back and my family their lives back. I can have a future now. After I was diagnosed I gave up all hope of having a normal life because that was easier. Now I am getting better everyday, I have time where I'm not in pain, which was something that I was told I would never have again.
I am one of the lucky ones, I can access TMS easily, this is not the case for so many sufferers. TMS is expensive and trials like Monash University are rare. TMS costs $180 a session and requires at least 20 sessions to see if it will work for the individual. Most sufferers are not able to work so paying for this simply isn't possible.
With an estimated (up to) 10 percent of the population having Fibromyalgia and 3 million Australians with depression or anxiety TMS could change the lives of countless sufferers and their families.
My goal is to get TMS allocated a medicare number so some of the costs can be covered by Medicare. Please help us reach those with this condition and give them back their lives.
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