Greg Hunt: Stop letting kids die from treatable diseases

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I'm 15 and was born with a rare chronic blood disease. Kids just like me are suffering or dying -- because the Health Minister won't fund an effective newborn screening program that’d save lives.

It took years for my blood disease to be caught. I go to hospital every two weeks for treatment. Doctors say if it'd been any later I'd have been permanently disabled. That is terrifying - but a sad reality for too many families.

Australia’s newborn screening program lags behind the world. Kids are unnecessarily suffering or dying.

Diagnosis takes, on average, five years. By this time, many kids are permanently disabled, or dead. All from a totally treatable disease.

In Australia we screen for 2 times less conditions than in America. Our program is smaller than most countries.

Greg Hunt, Brad Hazzard, please urgently fund a newborn screening program so other families like mine don't unnecessarily suffer.

Don't let another baby die from a disease that could’ve been treated all along.

 

 

Contact: Goodman.work@outlook.com

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