Research on Limb body Wall Complex. In memory of Arthur worrall.

Research on Limb body Wall Complex. In memory of Arthur worrall.

0 have signed. Let’s get to 500!
At 500 signatures, this petition is more likely to be featured in recommendations!
Hollie Worrall started this petition to Government and

Limb body wall complex had us.. Now it haunts me everyday. SIGN OUR PETITION AND GET THIS RARE BUT FATAL CONDITION RESEARCHED. I ALONE HAVE HEARD 238 FAMILIES STORIES WHO LOST THEIR BABIES TO LBW. MAKE A CHANGE.
Limb-body wall complex is a condition characterized by multiple, severe congenital abnormalities in a fetus. It results in a server abdominal wall defect. There is only ever 2 cases of survival ever recorded in history- but these cases only survived for a few hours. Limb body wall complex is usually diagnosed during pregnancy- it can be seen on the ultrasounds. There is no cure and no explanation to why this occurs. Such a rare but heartbreaking condition.

OUR STORY. ARTHURS STORY: 11 weeks+ an anomily was found with my son which resluted in him being induced at 15+ weeks.  We were then referred to the specialist in fetal medicine where he could confirm Arthurs condition was yet fatal and he would not be viable for life outside the womb. 3 more scans went by and we were still in the same horrific situation. We decided that if our son wasn’t going to make it God would decide when his time is.This is when we were hit with the words of:If the baby survives full pregnancy, there is server complications to me (mum) during labour. The specialist then said the horrific words of..if you have this child you will never carry your own child yourself again

17.01.2019, I took the first tablet mifepristone to stop my hormones going to my son. A heart aching 48 hour wait until we went back to hospital to be induced. On the 19.01.2019 we packed our bags ready to say goodbye to our precious little boy. I went through labour for 12 hours only going 5cm dilated- my little solider didn’t want to let go.20.01.2019 at 1:37 i gave birth to a gorgeous boy- you could see his blue eyes staring right into ours. 02.04.2019 your postmortem came back. Your final diagnosis was limb body wall complex and spinal bifida. You had a few other problems, but your heart and brain was fully functioning until the very end.

0 have signed. Let’s get to 500!
At 500 signatures, this petition is more likely to be featured in recommendations!