Put Congenital heart defects in school syllabus

Put Congenital heart defects in school syllabus

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Ella-Rae Carter started this petition to Government

The world for Chd (congenital heart defects) warriors and their parents is scary. They’re thrown into this battle against their will, 1 in every 100 babies are born with a type of chd, at the moment there are no preventions or cures. It is heartbreaking seeing all the babies suffering and even the adults still suffering when they grow up. What is even sadder is the many children who lose their lives to the horrors. Many chd warriors will need at least 1 invasive surgery in their lives, about 50% of those are in the first 2 weeks of their lives (when their heart is still the size of a walnut)

 

As a heart warrior myself I know how scary it can be. However, it is still the most under researched and least aware defect in the world. We can change that. It is already compulsory for the heart to be a part of the specification, especially in secondary school education, however the heart issues that are taught are ones developed at a later age due to lifestyle issues. However, it never goes into the issues that may already be affecting multiple children in the class at the time of learning, congenital heart defects. This leads to a stigma being created around them and questions asked like “You’re better now right?” And statements such as “you should have eaten less”. This hurts because there is no prevention or cure. We are born into this battle and stuck forever. Yes there are surgeries but they are only treatments, they don’t cure chd and sometimes may cause more issues. Please help us join this fight and make more people #chdaware

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