Idiopathic intercranial hypertension is a condition very disabling, along side loads of symptoms we live with the same symptoms someone would with a brain tumour but yet we don't have the brain tumour ,although not life threatening we have to live with this and the symptoms long term but up to date carnt get any financial or physical help,we have horrendous pains in our heads,neck and eyes, blurred vision, dizziness, brain fog , memory problems, sleeping problems and we get irritable on a daily basis also due to been exhausted, we have difficulty in maintaining normal daily lives, I have regular hospital appointments/ stays with regular medication and even brain  surgery on which I always suffer a bleed on the brain, employers don't see a problem physically so they don't understand when time off Is needed regularly, some days are totally bed ridden with pain and dizziness which also causes nausea