Fund Orkambi for those fighting Cystic Fibrosis (SK)
This petition had 1,858 supporters
My cousin Christie Brizinski, along with approx. 4,000 other Canadians, are living with Cystic Fibrosis (CF) which is a genetic disorder that affects multiple systems in the body, including the lungs and digestive tract. We have already lost two family members to CF, Elaine (in the attached video) and Michelle, and like so many others affected by this disease we have fervently kept hope that we will be able to experience a cure in this lifetime.
The realization of this hope has appeared on the horizon, just out of reach. We need your help so that Christie, along with many other Canadians, can grasp it. A new drug, Orkambi, has proven to reduce lung infections, and further, what makes this brilliant discovery so exciting is that Orkambi actually CORRECTS the malfunction in the most common strain of CF.
The sooner this can happen the better, as repeated lung infections eventually cause enough damage to necessitate lung transplant: a lengthy, highly invasive and expensive procedure which both Elaine and Michelle endured, wrestling for the remainder of their short lives with the difficult balance and harmful side effects of anti-rejection drugs, which, unfortunately, are carcinogenic. Access to Orkambi likely would greatly reduce or remove altogether the need for a transplant. For the first time ever, there is hope that Christie, and many others, could thrive into middle age, & beyond.
Health Canada recently approved this drug, but it is in the hands of the provincial governments to approve funding.
There is power in numbers. We know from experience that when we all pull together, miracles happen. On behalf of my family, especially Michelle, Elaine and our Christie whom we so cherish, Thank You from the bottom of our hearts for your support ❤️
Here is some info on our families request for support in covering Orkambi:
Petition supports rare drug https://northernprideml.com/2017/07/petition-supports-rare-drug2/
Beauval, Sask. woman calls on government to cover cystic fibrosis drug http://www.ckom.com/2017/08/04/sask-woman-calls-on-government-to-cover-cystic-fibrosis-drug/
Can't put a price on health http://www.cbc.ca/news/canada/saskatoon/price-on-health-woman-sask-government-drug-200k-1.4228521
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