Fund Orkambi for those fighting Cystic Fibrosis
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Dear Ms. Clark and Ms. Wynne,
Imagine learning that you had a fatal disease. Then imagine that a new treatment, capable of dramatically improving and extending your quality of life existed, but was inaccessible to you simply because of the price tag.
That is what is happening today to thousands of Canadians afflicted with Cystic Fibrosis. One of those Canadians is our daughter Lucy. Lucy is a beautiful, smart, funny, 4 year old who loves to skip, dance and sing. She has Cystic Fibrosis, and tragically without the development of a cure she will eventually die from her condition.
Incredibly, there is a drug called Orkambi that can dramatically improve the quality of life for those affected with her same condition. This drug is approved by Health Canada but unfortunately is not on the list of drugs that are covered under the provincial health plan of either province.
This is unacceptable. We, the undersigned, immediately call upon the Governments of BC and Ontario to enter into negotiation with the maker of Orkambi, Vertex Pharmaceuticals, to bring the drug onto the provincial health plan.
Thank you in advance for your leadership in this area. Lucy and all Canadians impacted by Cystic Fibrosis thank you!
Aaron Mittler, Mary Sanagan, Molly & Lucy Mittler, and supporters.
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