fund drug treatment for Aleena Sadownik
This petition made change with 31 supporters!
Three year old Aleena Sadownik, of St. Alberta, Alberta has been diagnosed with an extremely rare condition known as Matoeaux-Lamy Syndrome, or ‘MPS.’ Aleena lacks the enzyme needed to break down waste in her body, so it builds up on organs, bones, and muscles. This is a fatal condition that’s breaking down her little body. There is an effective drug treatment that can halt, but not reverse, the progression of this disease, thereby allowing Aleena to live as normal a life as possible. This drug is called Naglazyme, which is expensive, $300,000 per year for a child Aleena's age. There are 9 children in Canada living with this diagnosis; the governments of their provinces, that is, Ontario, B.C., Saskatchewan, and Quebec pay for their drug treatment. The government of Alberta has refused to pay for Aleena's. Without this drug, she will not survive. Each day that passes results in further irreversible damage to Aleena's body. Aleena needs this drug absolutely as soon as possible. Please sign this petition, so that Aleena can have the same opportunities to a good quality of life as any other child.
Please visit the Isaac Foundation website to read more about Aleena and this condition. www.theisaacfoundation.com
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