Approve Ocrevus (ocrelizumab) medication in Romania for MS patients
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Dear members of the F.D.A.,
My name is Cristina-Maria Drăgănescu, I am a multiple sclerosis patient (relapsing remitting form) since 2003. Multiple sclerosis has not stopped me from pursuing my dreams and finishing my education, and even more, I’ve written two books on MS to help others cope with this condition. I am writing on behalf of 10.000 patients suffering of various forms of multiple sclerosis, in Romania, who need the medication OCREVUS (ocrelizumab).
Here in Romania, due to the lack of interest in people suffering from multiple sclerosis, the treatment is scarce, patients are basically forced to accept any form of treatment if that even is available for them, many still remaining without treatment. Furthermore, the discrimination is at a breaking point as many relapsing remitting patients who are still on the working field are forced to hide their diagnosis from their co-workers, not to mention their boss. Multiple sclerosis is regarded as a stigma, and you are being looked down at, if you dare mention you are sick or suffering from a neurological condition. It looks like John Prine was right with his song "Some Humans Ain't Human".
What is available for MS Romanian patients at this moment, up to my knowledge are the following treatments: Interferon with Avonex, Rebif, Betaferon, Copaxone, Tysabri (Natalizumab), and Aubagio (very few have access).
Our request, as a large group of people suffering from relapsing remitting MS and secondary progressive MS all around Romania, would be that you would release OCREVUS (ocrelizumab) medication in Romania and in Europe too. People here are struggling lo live a "normal" life and face their demons, enduring whatever MS has prepared for them, everyday bringing a new challenge. We definetly need OCREVUS treatment here in Romania! IT IS AN EMERGECY for many patients who can't stand MS symptoms and Interferon medication anymore.
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