Today my son Odin was denied the tests he needs to prolong his life and give him some comfort and quality. Currently Odin is just shy of being a vegetable, he is almost 2 but doesn't talk, doesn't move on his own and cannot even hold is head up for more then a couple seconds. The genetic sequencing that Odin was denied for by his insurance company would give us clues as to how to treat his disease, it would give him a chance to not be in constant pain and to be with us for a few extra years. There is absolutely no way we can afford the testing on our own, the cost is well into the million dollar mark according to Odin's neurologists. We ask that people write letters and call on my son's behalf, asking them to appeal their decision and give my boy a shot at life. Thank you.
We are also asking people to write letters to the medical director on Odin's behalf, the contct information is:
Attn Medical Director
Excellus Health Plan, Inc.
165 Court St
Rochester, NY 14647
My son's full name is Odin Bowie Fortner-Watrous and his birthday is 8/23/2011.
To keep updated with Odin's condition head here: https://www.facebook.com/OdinBowie