Stop the circulation of inaccurate information about endometriosis

Stop the circulation of inaccurate information about endometriosis

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Linda Wright started this petition to Endometriosis organisations and

For Endometriosis Awareness Month (and every month of the year), please join us in a concerted effort to stamp out once and for all the misinformation that is being promoted in various endometriosis resources and campaigns, some by highly influential organisations, as to what endometriosis is.

No one knows what endometriosis is and has no authority to claim that they do, but we do have very clear evidence as to what it isn’t. And it isn’t the simplistic picture portrayed of a period-related monthly condition in which endometriosis cells behave like the lining of little uteruses, breaking down and dying every month to be shed as ‘trapped’ blood. If that were the case simple biology tells us that it couldn’t survive to grow and wouldn't exist; there would be no such thing as ‘active’ endometriosis because it would be dead. It would be an adhesive condition only as, worryingly, often appears to be claimed.

The whole point of endometriosis is that it survives the menstrual period to implant, grow and invade pelvic and other structures. It has long been known that the endometrium is very different from endometriotic cells and behaves differently. More importantly, it is well documented that the endometrium of women with endometriosis is very different from that of healthy women.  There is much reported evidence that endometriotic cells are driven by their own cycle in which they produce their own oestrogen, with quite different distribution and reactivity of the hormone receptors on the cells, with or without involvement of the circulating hormones that control the menstrual cycle, in order to survive and grow. 

Women are being put at very real risk by having this naive and false information repeatedly forced upon them with an inherent implication that endometriosis can be resolved by medical treatments to stop periods, which is well reported as likely to be the main contributory factor in the development of severe disease later down the line (ESHRE 2.1).

It is time for this to stop. Please support this petition for the safety of women with endometriosis in the UK.

No opinion is intended or implied as to theories of origin which is a separate issue.

For reliable evidence-based information on UK treatment pathways and referral criteria based on current regulations, guidelines and standards please visit Endometriosis Guidance and Support UK at:

https://www.facebook.com/groups/1148144608538280/

References:

http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-42302016000100072

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4077338/

0 have signed. Let’s get to 200!
At 200 signatures, this petition is more likely to be featured in recommendations!