Tell Congress NOT to cut endometriosis funding!

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Dear Speaker Pelosi, Leader McConnell, Chairman Shelby, Vice Chairman Leahy, Chairwoman Lowey, and Ranking Member Granger:

As advocacy organizations and individuals that understand firsthand the pain and hardship endured by those living with endometriosis, we urge you to support the requests led by Representatives Finkenauer and González-Colón along with Senators Romney and Warren to prioritize funding for endometriosis research in the upcoming fiscal year. Specifically, we ask that you increase funding for the National Institute of Health National Institute of Child Health and Human Development (NICHD) to at least the levels included in the House-passed bill as well as include report language that lists endometriosis as an eligible condition under the Department of Defense Peer-Reviewed Medical Research Program (PRMRP).

Endometriosis affects about one in ten women, can cause intense pain and is a leading cause of infertility. Despite its prevalence and health impacts, too little funding has been dedicated to better understanding, diagnosing, and treating this condition. Many of those who live with endometriosis go for years, seeing multiple doctors and even spending thousands of dollars before they can get a diagnosis and treatment. Those living with endometriosis lose an average of six hours of productivity per week at work and the condition is estimated to cost over $78 billion annually in healthcare expenditures and lost productivity. Medical research is the key to finding better ways to diagnose and treat this common and life-altering condition.

Specifically, we request:

  • Inclusion of endometriosis as eligible for funding under the DOD PRMRP in FY 2021. We are concerned by the report put forth by the Senate Appropriations Committee, which does not include endometriosis among the condition eligible under the PRMRP. Endometriosis was included in both FY 2018 and FY 2020, and this opportunity for investment in endometriosis research through the PRMRP must remain available. When research funding is low or inconsistent for a medical condition, it is difficult to attract researchers to specialize in that condition or apply for related research grants and we respectfully ask that you reinstate endometriosis as an eligible condition for FY 2021.
  • The highest possible funding level for the National Institute of Child Health and Human Development (NICHD) in final FY2021 appropriations legislation to ensure that resources are available to double funding for endometriosis research from the FY 2019 level and increase funding for endometriosis for $26 million. We appreciate efforts in both the House and Senate to increase funding for NICHD in FY2021 and ask that the highest possible increase be preserved in the final legislation.

Over 6 million people in the United States are living with endometriosis and our members know firsthand how endometriosis affects the lives of these women and their loved ones. The critical issues that face those with endometriosis need to be addressed and require quick, decisive action to increase research and awareness. As such, we ask that you provide increased funding better to diagnose and treat this condition.