Make Pain Clinics in Ontario a Priority

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Hello!

My name is Kayla, I am 22, from Ontario Canada and I have a rare disease called Ehlers-Danlos Syndrome, that leaves me with chronic pain and other consequences.  

For many years, I was told there was no hope for me to ever have reduced pain.  I was told I would be a full time wheelchair user by the time I am 25, and there is nothing that could be done.

Fortunately, about 2 years ago, I got accepted in a pain clinic where I go every month or so to be treated, have my prescriptions renewed, and discuss options with my physician.  I am a university student, and this is only made possible by the changes that we have made to my pain regimen.  I have accepted that I will never be completely pain-free, but an improvement is more than I can ask for and I am forever grateful.  The Hon. Doug Ford, the Premier of Ontario, has recently made a decision that will affect so any people with chronic pain, and I believe if he is made aware of the consequences, the only ethical option would be to reevaluate these changes.  The biggest change, is that patients at pain clinics will only be allowed to be seen by the doctor 4 times a year.  While this may be alright for patients with stable concerns, those like me who require tweaking and frequent check-ins mean that this change could impact my ability to live my life.

 I know I am not alone in this.  My clinic treats people of all ages, all walks of life and all conditions.  To take this away is a human rights issue, and I feel it is important that we let Hon. Doug Ford know the impact this is having on patients with chronic pain.  

I hope you will sign this to have our communal voice heard that this is not right, it hurts people, and something must be done.